Hi Rachelle rmhc123@rmhc123,
I have been on this group (HOCM, mavacamten = Camzyos) for around 8 months and a while ago someone posted here participating in the aficantem clinical trial (not sure if it was phase 2 or phase 3). Hopefully someone will show up here just put a message once in a while till the right patient in that clinical trial shows up here.
I understand your frustration, but for what I have studied the molecular structure of the aficamten appears to be more promising than the one I take the mavacamten (Camzyos) that I am taking now for almost 8 months. Further, it appears aficantem can have less potential side effects/drug interactions than the mavacamten. Just be patient and keep going on that research that I understand you don't know if you are taking the placebo or the aficamten. I knew the clinical trial aficamten 3rd phase is getting close to the end of the study so hopefully the FDA can make a decision on that drug.
For now this is all I found:
Conclusions
Among patients with symptomatic obstructive HCM, treatment with aficamten resulted in a significantly greater improvement in peak oxygen uptake than placebo. (Funded by Cytokinetics; SEQUOIA-HCM ClinicalTrials.gov number, NCT05186818.).

Good luck to you and I hope you feel better.