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DiscussionIs there anything to help stop or slow progression of MGUS?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (115)Comment receiving replies
Replies to "Good morning, I have had the diagnosis for four years. I am a 75-year-old caucasian male...."
Good morning. I would like to ask you a couple of questions about your diet and supplements. What percentage on average is meat to plant based per day and do you limit meat to once per day? I have seen many variations of the Mediterranean diet. What about grass fed pork, wild venison and eggs? I could go completely vegan today but my digestive system does not handle beans and legumes well so I am going to have to transition slowly to make sure I get enough complete protein in my diet. Also can you tell us how much turmeric/curcumin you take per day? Lots of clinical trials on its efficacy for slowing progression of MGUS but I don’t remember reading about the dosages. Turmeric does wonders for me for back pain- less so with curcumin. My back pain predates MGUS- caused by scoliosis and now some degenerative disc disease. A combination of turmeric, curcumin and walking every day almost completely keeps my pain at bay unless I do too much heavy lifting or bending over with yardwork like raking, weedeating etc. And finally, do you take the R or S-Lipoic acid? I have read many reports that R is better assimilated and recently found out by contacting Doctors Best (the brand I have been taking) that it is 50/50 R and S although they told me they do make one with just R-Lipoic. With that being said, even with 50/50 it gives me a ton of energy. Thanks for taking the time to share your expertise because your results speak for themselves and I know there are so many on this forum who are desperate to do something other than watch and wait.
I like your overall plan and think I'll adopt it. I already take many of the same supplements as you and today started adding the Turmeric/Curcumin C3. Had to stop taking the Pradaxa. Also ordered the Alpha Lipoic Acid, and PEA. Should arrive tomorrow.
I've been fermenting garlic in honey and taking a clove or two each morning for about a year now.
Been using a Stelo CGM about a month. They are available without a prescription. It helps with managing blood sugar levels. My A1c is lower now than it has been in years. I'm going on the theory that a lower sugar will help.
Thank you @circawdm for your very informative post. So happy to hear from someone who has incorporated diet and holistic remedies with such positive results. Going from .8 down to .3 M-Spike is so encouraging to hear. My M-Spike was .14 at diagnosis in 2021 and is now .4 and my light chains and all other labs have been normal. I have IGM Lambda MGUS. Did your doctor recommend full body CT’s and bone biopsy? And if so, would you have done them? I called my hematologist’s office today and told them I want to hold off until after the first of the year to give me more time to think about this. I have had 6 CT scans in 5 years for other issues (all negative) and I am concerned about how that radiation can affect one’s body. Your story is inspiring so I value your opinion.