So sorry you’re going through this, folks have different tolerance levels apparently. You might ask your doc about Kevzara, it may be worth the risk to try. At least research it.
From my experience the prednisone side effects get significantly better with a lower dose, below 7.5 in my case. I am presently at 6 mg and my skin is pretty much back to normal and I have lost 8 of the 12 pounds I gained after going on prednisone.
Thank you, I look forward to getting on a lower dose. Started on prednisone 15mg got down to 8 but severe pain returned so back to 12.5. Just now started 10mg. Fingers crossed 🤞
I was diagnosed with PMR March 2023 after receiving the shingles vaccine. Started on pred 15 mg which alleviated the pain. Currently on 12.5 mg up from 8mg after pain returned. I’m experiencing bruising, headaches, puffiness, and weight gain. Doc says from prednisone. Does this ever improve?
I was diagnosed 13 months ago. It has stopped all my activity that I once loved, hiking, biking, walking long distances daily. I continue to walk, but just around my apartment complex.
I took myself off Prednisone for a couple of weeks, doing the tapering. Pain was just too much. Went back on, but promised myself at a low dosage of 5 mgs…it works pretty good, I have bad days but usually due to too much activity. I live on 2nd floor and can only use stairs to get out. Now moving to my daughter’s single family large home. Stairs are the worst so I hope to get better when I move there.
HOWEVER, I PURCHASED A BODY HEATING PAD THAT HEATS THE UPPER PART OF MY LEGS (MY WORST PAIN RIGHT NOW IS THE TOP/BACK PART OF MY LEGS), AND UP TO MY SHOULDERS. WHEN I WAKE ITS EXTREMELY HARD TO WALK. I RELAX IN My CHAIR WITH THE HEATING PAD N MORNING CUP OF COFFEE FOR 25-35 minutes AND I AM GOOD TO GO. Keep moving all day, don’t sit too long.
From my experience the prednisone side effects get significantly better with a lower dose, below 7.5 in my case. I am presently at 6 mg and my skin is pretty much back to normal and I have lost 8 of the 12 pounds I gained after going on prednisone.
I have been on and off prednisone, mostly on, for 30 years with PMR but rarely over 10 mg. The biggest problem that I know that I have had is thin skin, which may bruise or bleed easily. Other than that it is a great drug for me. Age 78+
I was diagnosed with PMR March 2023 after receiving the shingles vaccine. Started on pred 15 mg which alleviated the pain. Currently on 12.5 mg up from 8mg after pain returned. I’m experiencing bruising, headaches, puffiness, and weight gain. Doc says from prednisone. Does this ever improve?
I'm so sorry for your situation. Yes, as others have stated, lower dose = fewer side effects.
I too got PMR after the shingles vaccine . Mine was 2019 I think. Took forever to get a diagnosis.
Also, I hoped to be done in 18 months, but here I am nearly 5 years later... on 2 mg. Was off for sever months ( yay) but after contracting a flu/ virus this summer, it flared again. I guess our immune systems are on high alert and the controls are not working properly. I hope this will go away one day but I'm prepared for the occasional flares.
Stopped dairy and gluten to try to improve my recovery. Seemed to help ( also helped the gut). Have gluten now and then when dining out ( hard to avoid 100%).
Tried acupuncture. Good results. And I don't push as hard at my physical activities.. cut back by 10-20%. These are things that seem to help. Good luck everyone.
I was diagnosed with PMR March 2023 after receiving the shingles vaccine. Started on pred 15 mg which alleviated the pain. Currently on 12.5 mg up from 8mg after pain returned. I’m experiencing bruising, headaches, puffiness, and weight gain. Doc says from prednisone. Does this ever improve?
I read about the side effects when I started on Pred. So I was prepared. I take a Biotin supplement every day for my hair and thankfully you only need to take one a day of those. I ate 3 dried soft prunes every morning in case of problems with constipation. I make a weekly brew of a parsley infusion. Parsley in a pan with water brought to the boil then turned off and left to go cold. Can add ginger and lemon. Sieved, then placed in a jug and put in fridge. Small glass of that every morning helps everything. The few weeks before I started Pred I found it hard to eat so lost a few pounds so was glad to get my appetite back but I was aware that Pred can make you think you are hungry when you are not. I am an eat to live and not a live to eat person (my hubby is the opposite and drives me mad). I was not going to let Pred win so started eating an orange after my dinner and telling myself this will pass and I will win. I am very aware of things that make inflammation worse and weight gain is defo one of them. You have to take control and be aware of everything you eat.
I read about the side effects when I started on Pred. So I was prepared. I take a Biotin supplement every day for my hair and thankfully you only need to take one a day of those. I ate 3 dried soft prunes every morning in case of problems with constipation. I make a weekly brew of a parsley infusion. Parsley in a pan with water brought to the boil then turned off and left to go cold. Can add ginger and lemon. Sieved, then placed in a jug and put in fridge. Small glass of that every morning helps everything. The few weeks before I started Pred I found it hard to eat so lost a few pounds so was glad to get my appetite back but I was aware that Pred can make you think you are hungry when you are not. I am an eat to live and not a live to eat person (my hubby is the opposite and drives me mad). I was not going to let Pred win so started eating an orange after my dinner and telling myself this will pass and I will win. I am very aware of things that make inflammation worse and weight gain is defo one of them. You have to take control and be aware of everything you eat.
I was diagnosed with PMR March 2023 after receiving the shingles vaccine. Started on pred 15 mg which alleviated the pain. Currently on 12.5 mg up from 8mg after pain returned. I’m experiencing bruising, headaches, puffiness, and weight gain. Doc says from prednisone. Does this ever improve?
Everyone is different, I'm sorry you are having such a tough time.
Walking has turned out to be one of the most important things for me. It feels like a miracle when it comes to reducing daily discomfort, and even though I initially felt awkward limiting myself to just walking around my condo complex, I now know a lot more people, and a lot more dogs.
Exercise is really important too, though I have to be careful not to do to much. But light stretching with bands can be really helpful even on marginal days.
Due to a seemingly bloody left eye which came upon me 7 days ago I have been taking 6 tablets of prednisone every morning for the last 5 days while the lab tried to figure out my MRI and if I really had a need for prednisone. The bloody eye only lasted for 4-5 minutes and was then normal again.
Today I was informed that a biopsy they took from my brain was normal and that I did not need to be on prednisone. In the meantime, they will also do a cat scan in the near future to see if I have any aneurisms.
My Rx bottle tells me to reduce the dosage to 5.5 tablets next week, then 5 tablets, and so on until I am down to 3 tablets for the final week. Can I stop prednisone abruptly without risking further complications?
Due to a seemingly bloody left eye which came upon me 7 days ago I have been taking 6 tablets of prednisone every morning for the last 5 days while the lab tried to figure out my MRI and if I really had a need for prednisone. The bloody eye only lasted for 4-5 minutes and was then normal again.
Today I was informed that a biopsy they took from my brain was normal and that I did not need to be on prednisone. In the meantime, they will also do a cat scan in the near future to see if I have any aneurisms.
My Rx bottle tells me to reduce the dosage to 5.5 tablets next week, then 5 tablets, and so on until I am down to 3 tablets for the final week. Can I stop prednisone abruptly without risking further complications?
Thank you, I will ask her.
Thank you, I look forward to getting on a lower dose. Started on prednisone 15mg got down to 8 but severe pain returned so back to 12.5. Just now started 10mg. Fingers crossed 🤞
Hi,
I was diagnosed 13 months ago. It has stopped all my activity that I once loved, hiking, biking, walking long distances daily. I continue to walk, but just around my apartment complex.
I took myself off Prednisone for a couple of weeks, doing the tapering. Pain was just too much. Went back on, but promised myself at a low dosage of 5 mgs…it works pretty good, I have bad days but usually due to too much activity. I live on 2nd floor and can only use stairs to get out. Now moving to my daughter’s single family large home. Stairs are the worst so I hope to get better when I move there.
HOWEVER, I PURCHASED A BODY HEATING PAD THAT HEATS THE UPPER PART OF MY LEGS (MY WORST PAIN RIGHT NOW IS THE TOP/BACK PART OF MY LEGS), AND UP TO MY SHOULDERS. WHEN I WAKE ITS EXTREMELY HARD TO WALK. I RELAX IN My CHAIR WITH THE HEATING PAD N MORNING CUP OF COFFEE FOR 25-35 minutes AND I AM GOOD TO GO. Keep moving all day, don’t sit too long.
I have been on and off prednisone, mostly on, for 30 years with PMR but rarely over 10 mg. The biggest problem that I know that I have had is thin skin, which may bruise or bleed easily. Other than that it is a great drug for me. Age 78+
I'm so sorry for your situation. Yes, as others have stated, lower dose = fewer side effects.
I too got PMR after the shingles vaccine . Mine was 2019 I think. Took forever to get a diagnosis.
Also, I hoped to be done in 18 months, but here I am nearly 5 years later... on 2 mg. Was off for sever months ( yay) but after contracting a flu/ virus this summer, it flared again. I guess our immune systems are on high alert and the controls are not working properly. I hope this will go away one day but I'm prepared for the occasional flares.
Stopped dairy and gluten to try to improve my recovery. Seemed to help ( also helped the gut). Have gluten now and then when dining out ( hard to avoid 100%).
Tried acupuncture. Good results. And I don't push as hard at my physical activities.. cut back by 10-20%. These are things that seem to help. Good luck everyone.
I read about the side effects when I started on Pred. So I was prepared. I take a Biotin supplement every day for my hair and thankfully you only need to take one a day of those. I ate 3 dried soft prunes every morning in case of problems with constipation. I make a weekly brew of a parsley infusion. Parsley in a pan with water brought to the boil then turned off and left to go cold. Can add ginger and lemon. Sieved, then placed in a jug and put in fridge. Small glass of that every morning helps everything. The few weeks before I started Pred I found it hard to eat so lost a few pounds so was glad to get my appetite back but I was aware that Pred can make you think you are hungry when you are not. I am an eat to live and not a live to eat person (my hubby is the opposite and drives me mad). I was not going to let Pred win so started eating an orange after my dinner and telling myself this will pass and I will win. I am very aware of things that make inflammation worse and weight gain is defo one of them. You have to take control and be aware of everything you eat.
Thank you, I will try the parsley tea.
Everyone is different, I'm sorry you are having such a tough time.
Walking has turned out to be one of the most important things for me. It feels like a miracle when it comes to reducing daily discomfort, and even though I initially felt awkward limiting myself to just walking around my condo complex, I now know a lot more people, and a lot more dogs.
Exercise is really important too, though I have to be careful not to do to much. But light stretching with bands can be really helpful even on marginal days.
Due to a seemingly bloody left eye which came upon me 7 days ago I have been taking 6 tablets of prednisone every morning for the last 5 days while the lab tried to figure out my MRI and if I really had a need for prednisone. The bloody eye only lasted for 4-5 minutes and was then normal again.
Today I was informed that a biopsy they took from my brain was normal and that I did not need to be on prednisone. In the meantime, they will also do a cat scan in the near future to see if I have any aneurisms.
My Rx bottle tells me to reduce the dosage to 5.5 tablets next week, then 5 tablets, and so on until I am down to 3 tablets for the final week. Can I stop prednisone abruptly without risking further complications?
This would be a question for your doctor.