Vestibular migraine: What symptoms do you experience?

Thank you ans! You made it very clear 🙂
I am now wondering how "myofascial release" can impact vestibular migraines and what is the connection between the 2.
This therapy can help migraines?
Any further thoughts on this appreciated from anyone!

I agree with @ans that finding a PT with expertise in vertigo has been the most useful for me, and my mother, and my daughter.

Vestibular migraine seems like a catch all to me. If it is indeed coming from the brain, then that would be neurology. But a PT can eliminate other sources.
There are several meds that can be tried. Topamax wasn't helpful for us.

@briarrose MFR is myofascial release which is a specialized type of physical therapy to stretch tight fascia. You probably have seen fascia when skinning a raw chicken an it's the cobweb like tissue. It permeates everything in our bodies and can become damaged or restricted which prevents normal movement. These experts are trained in the John Barnes methods as he is the one who created this therapy. I have done a lot of this MFR and it has helped me a lot. You can learn more about it in this discussion. The beginning pages have lots of links to information and videos.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Thank you kindly Jennifer 🙂

Gosh everything that you say you have I have all that and more I have never heard of anyone like me the Dr's don't do much unless it's an emergency or physical therapy

Hi, sorry to hear that you have been diagnosed with this horribly frustrating condition. I was trying to find my post so that I can see what symptoms I have already listed because there are sometimes just so many. You often feel like a crazy person. I am surprised that you were actually able to get the diagnosis of vestibular migraine. None of the doctors I had been to even mentioned the possibility. I actually found the diagnosis on my own by searching John Hopkins site. There is a female Doctor Who does a video for Johns Hopkins on vestibular migraines. When I saw this, I almost started to cry. I could not believe what I was hearing. I mentioned it to my Eye Doctor and he knew of a neurologist who treated only vestibular migraines and was considered the best in the state of New Jersey. He will not agree to see you until reviewing your charts and symptoms. I have to say little known about our condition and it’s my belief that there is very little effective treatment. I don’t want to burst your bubble. Some people have had success but I question some of their symptoms even as I have my own.
Sometimes you just question the whole damn thing. If you had a broken leg or a broken arm or even a blocked artery, you could get a more concrete diagnosis and a definite course of treatment but this is so much guest work much of which has not really worked for me.
I will probably have to end this rant in a couple of minutes because I am limited with the amount of screen time I can view even though I am voice texting. I have very little functional time. My mornings are my best time. So I get as much as I can get done in the morning And then I have to lay down for an hour or two. And start again but it does get progressively worse throughout the day- lightheadedness, head pressure, eye pain, and off balance issues and more.
They all worsened based on physical movement and visual stimulation. I will try and reach out again later to see if I can provide you with any further information. If you have any questions, please feel free to ask.
Terry