Sorry to hear your experience. I'm familiar w/ the Mayo 'system' in which TEAM-work reviews, researches... In Tampa there's the budding Moffitt Cancer, NCI Research and Provider Center.... I had a friend from Scottsdale, AZ Mayo referred to Mottitt. Much still depends, sadly, upon the experience and openness of the Dr/s who review a patient. This is why I'm seeking a TEAM of Reviewers.... Hope you hubby IS better !!