Melanoma (internal): What questions should we ask the oncologist?

Posted by marywc @marywc, Aug 6 9:34am

My daughter had what was thought to be a cyst from endometriosis and scar tissue from her 5 year old C -section removed. The doctor was 99.9% positive it was endometriosis. Nope. He was wrong. Turned out to be a 6 centimeter tumor - Melanoma. Internal turnout. EVERYONE on this thread. Please get a full body PET scan yearly after you have had skin melanoma. My daughter had a tiny spec of melanoma removed from her next 12 years ago. It is not uncommon for melanoma to go dormant for years and reappear INTERNALLY. My daughter’s PET scan is this Friday. Then she meets with the medical team on the 14th. She’s been told it is at least state 3 and could be stage 4. This was a shock to us all. We are reeling but still don’t know the full extent. It may be everywhere. Brains tumors can be melanoma. What questions should be be asking her melanoma oncologist. We are all scared.

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marywc | @marywc | 23 hours ago

Hello! It was my daughter who was diagnosed with 2 metastatic melanoma tumors back in July; a 5 cm in her left lung and a 7 cm in her left femur. Thankfully she lives near enough to John Hopkins in Baltimore that she can drive there and is being treated there. She’s had 4 immunotherapy treatments and her lung tumor has shrunk to half its original size and her tumor i. Her femur is gone. A combination of radiation and immunotherapy dissolved/destroyed it. We are overjoyed. I don’t know what Keytruda is. But find a fascility that will do immunotherapy which was developed specifically for Melanoma cancer and is the most effective against melanoma. Immunotherapy works!