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Rare acute leukemia, both ALL and AML (mixed phenotype acute leukemia)

Blood Cancers & Disorders | Last Active: Dec 12, 2024 | Replies (8)
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@loribmt

Hi @liz21054 I’m sorry to hear about your husband’s relapse and a delay in his transplant. I had my transplant for AML at Mayo-Rochester and the doctors/staff there are amazing. Hopefully your husband will be able to go ahead with this after his next round of treatments.

I’m wondering if you can speak with a social worker at Mayo in the transplant department. They are so knowledge and usually the go-to person to help with suggestions for financial and support systems.
I have great reference site in a discussion I started a while ago with information about the nbmtLINK. (National Bone Marrow Transplant Link). It’s a website that is filled with resources, podcasts and other information for BMT patients and care givers. Here’s the link to the discussion. The link to nbmtLINK is in the opening paragraph.
https://connect.mayoclinic.org/discussion/bone-marrowstem-cell-transplant-informational-website/
There’s also Family and Medical Leave which provides certain employees with up to 12 weeks of unpaid, job-protected leave per year. It also requires that their group health benefits be maintained during the leave. Might be worth a look.
https://www.dol.gov/general/topic/benefits-leave/fmla
Have you talked to anyone in HR at Mayo to see if there are programs to help you secure your job?

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Replies to "Hi @liz21054 I’m sorry to hear about your husband’s relapse and a delay in his transplant...."
Liz21054 | @lizzyket | Dec 1, 2024

I have looked into things and talked to HR about leave. Thankfully I've only taken a couple weeks of leave because I've put my foot down on his family to stay here with him while I'm working. I'm trying to save the FMLA for potentially going to Texas and for when he may need my help more (he's doing well physically now). I know 12 weeks seems like a long time to most but with a rare form of acute leukemia it's really not that long... this is a very long road for us. my job is also supplying us with health insurance so I want to do everything I can to keep my job. This is why I've told his family they have to help. The income has also eased a lot of the financial burden so that we can stay in the same home and afford our mortgage . thank you for your help

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