Is there anything to help stop or slow progression of MGUS?

Posted by amyboylan1 @amyboylan1, Oct 12 10:14pm

I am wondering if there is anything anyone is doing to stop or slow the progression of MGUS. I m recently diagnosed and have a lot to learn. My oncologist said there is nothing that can be done. Also could some of you share how long you have had MGUS. I am like I’m sure like all of you very concerned about my MGUS processing. Thank you.

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@1oldsoul

This is an update to my previous comment on Oct 14. My labs last week indicated that the IGM continues to steadily increase-still with normal light chains and regular lab work such as CBC and complete metabolic panel. Soooo, the hematologist now wants to do a complete skeletal, neck, chest, abdomen and pelvic CT and a bone marrow biopsy as a “baseline.” My IGM is now 697 and he states he always runs those tests at 700. With that being said, I am switching over to the Sabinsa C3 Curcumin that Sloan Kettering uses in their trial of a Whole Foods plant based diet, along with Qwell Pharmaceuticals Algae (vegan) Omega 3 (also in their trials) and I’m going to transition into going vegan. Because the hematologist stated that the MGUS I have would probably progress to Waldenstrom’s rather that MM (if it moves from MGUS) I am more committed than ever to using any natural methods possible to halt the progression since I am extremely sensitive to the side effect of drugs. (he stated they do have drugs that can treat Waldenstrom’s but I am scared to death of side effects) On a super positive side, the Red light therapy I have been using for plantar fasciitis is a game changer!!! Within 2 weeks of using it I noticed a huge difference and I am now back to walking 4-6 miles every day. I use the red light therapy 10 minutes per day 5 days a week at a distance of 6” from my feet ( the bottoms of my feet pointing toward the device.) I do an an additional 10 minutes further away from the device front and back for whole body healing. With the amazing results I have had for plantar fasciitis I am hoping it will somehow help the MGUS as well. The clinical trial gov ID is NCT 05640843 for the trials of Whole Foods plant based diet. I believe I gave the link in a former comment. If anyone that was in their trial (which is ongoing until 11/2026 and I believe is still accepting participants if you can make it to New York and New Jersey) has an official printout of their Whole Foods plant based diet could you provide it here? I know many participants were provided 2 ready made meals per day which were provided by Daily Harvest according to the info I read. I will keep y’all updated after my scans, bone biopsy and at my next lab. By the way, I will be 71 in January and have no other health issues just for info. Wishing y’all a happy Thanksgiving and a blessed Christmas. Let’s pray for each other that we can take control of our health and let God work his miracles. God bless you all.

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I take MegaFood’s Turmeric and MSK pharmacist said it was similar to what they use in the trial. I would love to see food details also if someone has it. I’ve not gone vegan but plant-based which incorporates some fish and chicken, e.g. Mediterranean diet, and now exercise regularly. Have been stable for last year.

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Glad you’ve been stable for the past year. How much exercise are you doing?

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@1oldsoul

Thank you so much for your reply. I am also of the opinion to watch and wait for awhile longer but my Hematologist is very conservative. I recently asked him at what level he would consider the IGM to be very concerning and he stated 1500. I worry about all the radiation in the scans but my Hematologist is the only one in my area so I don’t want to refuse his treatment plan. Thank you for praying for me. I will do the same for you. Please keep me updated and I will do the same. Since I have been very sensitive to side effects of medications since my teens I have always had to look for natural remedies and will continue to do so to beat this, God willing.

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Praying for you

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