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@boatsforlife

Hello again @junecc. I hope you are having good luck getting your insurance worked out. I've read other people being concerned about the hassle factor involved in having regular echos done but my view on it was this: I have to get an echo once a month for the first three months - about the same as going and getting a haircut. And it takes about the same amount of time as a haircut. After that, once things settle into a routine, it's only once every 3 months. I've been on it now for about 14 months, and at 3-month intervals I can never even remember when the next one is due - it's become that much of a nothing in the "hassle" category. For me, given how much the oHCM was restricting me, it was a tiny price to pay. It also gave me a lot of comfort knowing that after 16 (17?) years of undiagnosed, unmonitored deterioration, I was being monitored regularly, and any negative responses would be caught quickly. Every person is different, of course, and your experience will probably not be quite the same as mine, but I encourage you to not let a (really minor) short term initial hassle distract from what could be (hopefully will be) an immensely positive long term benefit. Best wishes!!

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Thank you, and I totally agree. Unfortunately an echo is an all day event for me bc I don’t have a center of excellence near me. 2 1/2 hour drive, so 5 hours plus the echo. Because my gradient increased significantly, I’m anxious to see how the drug can help. It will be worth it!