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Kidney cancer patients: Let's connect and introduce yourself

Posted by koke @koke, May 2, 2023

I have stage 4 kidney cancer. Taking target and immunotherapy drugs. Would love to connect with anyone who is going through the same process or has kidney cancer!

Interested in more discussions like this? Go to the Kidney Cancer Support Group.

mapleskoff | @mapleskoff | 1 day ago

Hello, All.
I'm Michael, a 83 YO man with stage I kidney cancer, It was found about 18 months ago incidental to a bladder retention problem which necessitated a CT. Also found was a small tumor on my right lung. The kidney was treated with a short course of radiation this past May, but has continued to grow, albeit very little. The lung tumor was treated with radiation in October, and a follow up CT will be done in March. The Thoracic Oncologist believes the lung will have been cured.
I should mention that I do not desire to have any major surgery, especially at this age. Also of not; I have chronic kidney failure of long standing, possibly caused by overuse of Ibuprofen. The CKF is stage III, and well controlled. My Type II Diabetes is also well controlled without any meds, and an A1C that has been around 6.4
The Radiation Oncologist has resumed following me for the kidney mass. This after discussions with a surgeon I saw last year, and the GenitoUrinary Oncologist I have been seeing lately. The GU Doc suggested a course of Chemo, and frankly the side effects were off-putting, so I was delighted when the RadOnc called to tell me that she would like to follow me, as the tumor is very slowly growing, and her thinking is a follow-up MRI in six months.
I had been very anxious and upset about having two different, and primary cancers. She put me at ease about my kidney tumor, and I'm hoping the small lung tumor is taken care of.
Thanks for reading this. It is important for me to know that there are so many more out there with similar diagnoses.

REPLY
1 reply
ronsale | @ronsale | 10 hours ago
In reply to @mapleskoff "Hello, All. I'm Michael, a 83 YO man with stage I kidney cancer, It was found..." + (show)
@mapleskoff

Hello, All.
I'm Michael, a 83 YO man with stage I kidney cancer, It was found about 18 months ago incidental to a bladder retention problem which necessitated a CT. Also found was a small tumor on my right lung. The kidney was treated with a short course of radiation this past May, but has continued to grow, albeit very little. The lung tumor was treated with radiation in October, and a follow up CT will be done in March. The Thoracic Oncologist believes the lung will have been cured.
I should mention that I do not desire to have any major surgery, especially at this age. Also of not; I have chronic kidney failure of long standing, possibly caused by overuse of Ibuprofen. The CKF is stage III, and well controlled. My Type II Diabetes is also well controlled without any meds, and an A1C that has been around 6.4
The Radiation Oncologist has resumed following me for the kidney mass. This after discussions with a surgeon I saw last year, and the GenitoUrinary Oncologist I have been seeing lately. The GU Doc suggested a course of Chemo, and frankly the side effects were off-putting, so I was delighted when the RadOnc called to tell me that she would like to follow me, as the tumor is very slowly growing, and her thinking is a follow-up MRI in six months.
I had been very anxious and upset about having two different, and primary cancers. She put me at ease about my kidney tumor, and I'm hoping the small lung tumor is taken care of.
Thanks for reading this. It is important for me to know that there are so many more out there with similar diagnoses.

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At 82, being about your age and having low dose treatment for prostate cancer a couple years ago and now being treated for kidney cancer with Keytruda and having had high dose radiation to stop bleeding from malignant kidney lesion six months ago which was successful, I can relate to you. I also opted out of surgery for Kidney because of my age. I take it a day at a time and am in the process of deciding whether to continue with the immunotherapy because of severe skin rash. There are many of us going through a difficult time battling cancer.

REPLY
1 reply
mapleskoff | @mapleskoff | 9 hours ago
In reply to @ronsale "At 82, being about your age and having low dose treatment for prostate cancer a couple..." + (show)
@ronsale

At 82, being about your age and having low dose treatment for prostate cancer a couple years ago and now being treated for kidney cancer with Keytruda and having had high dose radiation to stop bleeding from malignant kidney lesion six months ago which was successful, I can relate to you. I also opted out of surgery for Kidney because of my age. I take it a day at a time and am in the process of deciding whether to continue with the immunotherapy because of severe skin rash. There are many of us going through a difficult time battling cancer.

Jump to this post

Thanks for your comments. Getting old seems to have a few drawbacks for some of us. We travel on and take each day as it comes. You are a inspiration. Please, keep on keeping on.

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