I was just diagnosed with unspecified connective tissue disease.
I was wondering if any one else has this disease and how are you feeling and how are you being treated.
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Do you know what bloodwork has been done?
I have never heard of UNSPECIFIED connective tissue disorder 🤔
I have a patient that I am working with who has suspected CTD, and waiting on labs.
Just curious what your symptoms are?
"If you have overlapping features of several autoimmune connective tissue disorders, it’s called mixed connective tissue disease. If you have some symptoms of some autoimmune diseases, but they don’t meet the criteria for any specific disorder, it’s called undifferentiated connective tissue disease."
( my.clevelandclinic.org )
This is what my dr. Called it but I believe they are the same thing. Undifferentiated. I had tons of blood work done. The thing is they were treating me for many different things at once. Long term COVID, Epstein Bar, Cytomegalovirus. I also have Fibromyalgia, Asthma/COPD with my Rt.. diaphragm paralyzed. Breathing issues, scarred lungs RLS, Insomnia Hypothyroidism and many other things.
The some of the bloodwork I had are :
1. ANA screen immunoassay. Positive
2. EBV early antigen ab (igg). H
3ebv viral capsid (vac) ab 513
4. Immunoglobulin g subclass1. Low
Immunoglobulin g subclass 2 low
5. Rpm antibody. Positive
6. SARS cov 2ab spike high
These are some of the tests I had done.
My back is also fused at L4/L5.
I had a full knee replacement rt. 3 years ago.
Needless to say I have chronic pain, and almost unbearable exhaustion. My eyes and mouth are extremely dry. My breathing is not good. When I lay down my O2 drops a lot. I have oxygen at night with a Bipap and I use oxygen when I walk. Can’t breath very well when exerting myself at all.
It is hard to tell which is causing the pain and exhaustion,
I have UCTD. I have completely changed my diet and found it has helped a lot. Check on the anti inflammatory diet . I am gluten free, lactose free and stay away completely from processed food. I focus on eating lots of criciferous veggies ( broccoli, cauliflower, kale,spinach) and eat lots of fruits. Turmeric,ginger, flax seed all help. I’m a smoothie addict. I listen to my body and try to rest up before I get too exhausted! It’s a struggle and I’m not perfect but diet has helped me a lot!
I gained so much weight from prednisone. I am very overweight and can't easily exercise because of major breathing issues. My doctor has put me on a special diet. Hight in protein low carbs. just berries to eat no other fruit. Eat only chicken, turkey and fish. Supposed to be anti -inflammatory. Hopefully I can lose weight.