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Has anyone had minimally invasive Septal Myectomy?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 4 days ago | Replies (9)Comment receiving replies
Hello @debra1954, and welcome to Mayo Connect!
I had open heart surgery, septal myectomy and papillary myectomy at the Mayo Clinic. I also asked and was told this cannot be done by minimal invasively by my surgeon.
He told me the septal myectomy is too intensive and specific to be done thru the minimally invasive technique. I believed him.
Fellow member @walkinggirl also had open heart surgery at the Mayo Clinic, and I am not sure if she asked about doing a septal myectomy using this method or not?
Honestly? None of us wanted to have open heart surgery!
I totally agree with you, the mere thought of open heart surgery is enough to freak anyone out! It takes a lot of bravery and courage to accept you need this surgery. I have my life back and I am so very grateful!
Anyone who claims that they can do a septal myectomy through this method needs to prove their statistics are reliable in my opinion, and 100% be performed at a COE (Center of Excellence).
Do you know if your proposed surgeon is proven in this surgery? Are you affiliated with a COE?
Replies to "Hello @debra1954, and welcome to Mayo Connect! I had open heart surgery, septal myectomy and papillary..."
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Hello debra1954,
As our mentor Debra noted, I did have the surgery mentioned. Daunting is an UNDERSTATEMENT as I faced the inevitable surgery at age 75. I have never looked back because, as Debra expressed "I have my life back and I am so very grateful!" My cardiologist made it absolutely clear that "Your family will miss you," so, I assume, 2+ years later, my life would be quite different....
No, I never heard of this minimally invasive septal myectomy. I looked it up last night and found "There have been recent studies about minimally invasive approaches. These approaches use a smaller incision. Even though full open heart surgery remains the gold standard, studies from 2017 and 2018 suggest minimally invasive approaches may be just as successful." Two sites found using Google: https://www.healthline.com/health/heart/septal-myectomy#fa-qs and https://pmc.ncbi.nlm.nih.gov/articles/PMC5774662/
I wonder where the procedure takes place (Georgia?), because I fail to find its use for a septal myectomy at our major COE medical centers, yet, it may privately be under study at these places. Please keep us informed about your decision for surgery and how you are faring through this journey.