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Sleep Apnea and Bronchiectasis
I have sleep apnea and use a CPAP machine. I was diagnosed with bronchiectasis earlier this year and it was determined that I have MAI in my lung. I use distilled water in the CPAP humidifier. Does anyone have recommendations about the water used in a CPAP and whether it might be contaminated with MAI?
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Dr. Falkinham, guru of all things NTM, determined that distilled water is not MAI/MAC/NTM free. I've read that some people boil distilled water before using.
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3 ReactionsThis might be overkill but I go by the cliche " If you want something done right do it yourself". At least whenever possible.
So I very much boil almost all water...distilled water, purified water, tap water etc. Another good cliche, "Error on the side of caution."
I boil water to get it close to 220 degress for 15 minutes. That which I drink or use for medical purposes for later I will place in glass container(s). It's all part of the now routine included in those things I do with have BE. Just have to live with the fact that much time now has to be devoted to the BE rountine to stay healthy as possible and airways clear as possible. Life happens.!
Barbara
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1 Reaction@bsardella @scoop & @blm1007blm1007 are right - you need to boil it.
Here's some other news you may not want to hear - along with all the other concerns over bronchiectasis - you also need to keep your entire CPAP scrupulously clean - mask, hoses, rreservoir. Sanitize regularly according to the manufacturer's directions.
A few years ago, a dear friend was struggling with repeated bouts of pneumonia - and I learned he was lax about cleaning and sanitizing. It was better when he followed directions.
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1 ReactionI have a question for those who boil water and equipment: Are you concerned about the steam? Since we are told that saunas and steamy showers are hazardous for us, that the steam released when sterilizing would be the same. Is turning on a hood-vent fan enough?
There is a difference between steam from boiling water, which is sterile, and mist/water vapor from a hot shower or a hot tub, which is not.
So don't worry about steam from a boiling pot.