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Experience with amiodarone?

Heart Rhythm Conditions | Last Active: 4 days ago | Replies (30)

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@bettycll

I am adding more comments as to personal experience of taking Amiodarone. I was put on 400 mg daily of Amiodarone when I first went into AF. After several months I was having a lot of difficulty breathing. I was told it was the AF.

Things got worse, and I went into bradycardia; my heart rate was in the 30's, and I could barely walk across a room. At that time I had been on Amiodarone for just over a year; of course, I was taken off of it then. Since I was told that it stays in your system for 6 months, no one knew if my systems were due to the Amiodarone or something else.

Meanwhile, I saw a pulmonologist who determined that the Amiodarone was extremely toxic to my lungs. I started on steroids for that. I had no other damage to eyes or any other organs (as far as I know).

An episode in which my heart stopped and I passed out resulted in an emergency pacemaker. I have since had 2 other episodes of AF. I have taken Sotalol and Flecainide and am currently on 100 mg of Flecainide twice a day in hopes of preventing more AF episodes.

As gloaming said, "Amiodarone bears watching". Amiodarone works well for some (as indicated above). However, for me it is a "poison pill" (designation given by my pulmonologist).

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Replies to "I am adding more comments as to personal experience of taking Amiodarone. I was put on..."

Thanks for sharing. FWIW I’m doing pretty well on 100mg Flecainide BID. Occasional flare ups of PVCs come and go. Never been able to confidently identify a trigger. But anxiety definitely increases intensity during episodes of high burden (40-50%).