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Renal nutritionist

Posted by susangail53 @susangail53, Nov 16 9:28am

I am so tired of hearing what you can and cannot eat with PKD. I've heard plant based keto is excellent for function, then I read keto with grass fed beef and mostly plants is better. I always thought ketosis is bad for the kidneys. So...I've made an appointment with a renal nutritionist at my nephrologist's office in January. Has anyone used a renal nutritionist? Is it helpful or will I just be wasting more time with this disease when nothing will actually help? Thanks for your advice!!!

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susangail53 | @susangail53 | 3 days ago
In reply to @kidneybean1 "Susan I am 69 and have Polycystic Kidney disease. Egfr 37. Egfr was 51 two years..." + (show)
@kidneybean1

Susan
I am 69 and have Polycystic Kidney disease. Egfr 37. Egfr was 51 two years ago. I have a renal dietician who suggested Keto diet. (Plant based). I called a top Nephrologist I knew at Boston’s Tuft University hospital-Dr. Ron Perrone. He said there are not enough studies on safety and efficacy for keto diets. He said follow a reasonable heart healthy diet like the Mediterranean diet. My nutritionist agreed with Dr. Perrone. She did say that I need to cut out white sugar and processed foods and continue to drink plenty of water. I bought the book: The Cooking Doc’s Kidney-Healthy Cooking book by Blake Shusterman, MD. It has delicious recipes, motivational stories and the latest science. My egfr remains stable at 37 and I feel good. He is on youtube and even has interactive podcasts to answer any questions you may have on diet and kidney disease. Very helpful to me!

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Great info! I've been reading a lot about plant based keto; however, I'm not comfortable with it! Thank you!!

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