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Am I the only one that does not have flares but daily ongoing pain?
Fibromyalgia | Last Active: Dec 2, 2024 | Replies (20)Comment receiving replies
You are not the only one. I see that degenerative disc disease is common among us. Probably the nerves are being excited, exiting the spine. Would be my guess. Relaxation techniques are helpful in my case. After the many surgeries, and continuing degeneration and pain I simply refuse to relax enough. (I want to do my work!) What I have found super helpful is MFR (there is a section here) but you have to find the right MFR therapist. I found one who is self taught. He does a great job on my body. Also, I take low dose Percocet (10/325) one half tab daily (1.5 average per day) for 25 years. I have no addition issues what soever. I have chronic pain tho and it helps me with where the pain is the most. Tried all the nerve/antidepressant meds - they did not work nor could I tolerate them. ( I am drug sensitive). Also - if you haven't checked out the weather: check out the weather! the days that are the worst for me have high-temperature swings and changes in humidity dryness - and certain seasons (December and June) and HEADING INTO a rain. (when it rains I am fine). Weather is my biggest daily trigger. We are water-based beings and I have to be careful about alcohol and salts and maintain an equilibrium. I have to walk everyday and keep my body circulating fluids. good luck!
Replies to "You are not the only one. I see that degenerative disc disease is common among us...."
I am at my worst in the summertime. I know from reading other people's stories that it is the cold that gets to them usually. By I am the opposite. I love the cold. It is any kind of heat that I can't handle. Because too for me it isn't just the pain but all these weird symptoms I get. And not so weird like being sensitive to heat. But things like spiking a high fever with activity. I think something in my body that controls my temperature is off. It can be in cooler weather outside, even in the wintertime, and If I start working around the house especially, if I get too warm which is super easy for me to do my face flushes, and I start sweating like crazy. Like I have been running marathons or something. And if I don't sit down right away and get cooler, I get a temperature that can go up to 102. My normal temp is actually low around 97. The temperature thing was one of those strange symptoms that I didn't understand and no doctor I think believed me. I stopped bringing things up to my doctors a long time ago because of how they act. But I have been tracking my temps for a while now and what brings them up. And it is activity or high anxiety or stress. But always activity if it is too much and if it is something where I bring my head towards the ground such as mopping or something. With the fever, I also feel sick and dizzy and usually start getting what feels like a heat headache. I finally found something on the web that talks about it. It is a real thing! This blew me away. I was so relieved. But there is hardly anything about it out there. I can't think of the name at the moment.
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I was having lower back pain but have found great relief from the muscle spasms by sleeping with a pillow:
-- Side sleep - place between the legs.
-- Back sleep - place under the legs.
Spasms have stopped.
For neck pain - I am using a contoured Tempur-Pedic Pillow. I had to get accustomed to it but it works. There are different sizes. It supports the neck and head.