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CLL Watch and Wait supplements/diet

Blood Cancers & Disorders | Last Active: 3 days ago | Replies (12)

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@loribmt

You might be interested in this older discussion with members who have CLL and were curious about EGCG.

Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive
https://connect.mayoclinic.org/discussion/chronic-lyphocetic-leukemia/
It’s important to discuss the use of supplements with your hematologist. Some can interfere or interact with medications or have unpredictable side effects. Especially if you’re taking other meds. I had AML and wasn’t able to consume turmeric and had to avoid pomegranate and orange juice for a period of time. Innocent foods that you would think are innocuous. But they can have serious consequences in some situations.
How long ago were you diagnosed with CLL?

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Replies to "You might be interested in this older discussion with members who have CLL and were curious..."

I am meeting with my hematologist/oncologist tomorrow. I was diagnosed one year ago just a random CBC. I spent time in the Gulf as a Navy Nurse so I am currently seeing the VA in Ann Arbor MI. I plan to request a referral outside the VA for a CLL specialist. As a nurse practitioner I have to advocate for myself like I would my patients! I know there are people with tons of experience and I really like to hear from them. The EGCG and Tumeric was mentioned by a person writing an article for the CLL society and I have reached out to him for an update since it was in 2016. To my surprise I got a great response full of information! So far my WBC is normal range as are all of my other labs, I just want to be proactive and know I did everything I could do about my situation. Thanks for your response!