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CLL Watch and Wait supplements/diet

Blood Cancers & Disorders | Last Active: 3 days ago | Replies (12)

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@marynoelle

@54321kl Thanks for responding I was also diagnosed one year ago with elevated lymphocytes. No other symptoms at that time. Lately I’ve been feeling tired. I’m scheduled to have bloodwork done late December but probably should do sooner. I’m not being followed by my Hematologist as I am considered stable. Being followed by my Nurse Practitioner. Kind of nerve wracking…….

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Replies to "@54321kl Thanks for responding I was also diagnosed one year ago with elevated lymphocytes. No other..."

Is your NP your primary provider? I am a Family Nurse Practitioner and when I got lab results it reassured me when my collaborating physician said "well if you're gonna get one it's a good one to get" I really try to keep that in mind! I spent time in the Gulf War and did see an outside hematologist/oncologist then completed all the necessary paperwork to apply for VA benefits since CLL is on the short list for service in the Middle East. I am going and have a long list of questions and requests, one being how can I see CLL specialist. I refuse to wait I firmly believe in making changes so I can do my best to delay and I feel I need a care team not just my PCP. It makes sense to just be reassured if nothing else!