Mold Toxicity

Posted by Sundance(RB) @sundance6, Jan 25, 2019

Was doing some research on Symptoms of Lyme Disease the other night and ran into similar symptoms of Mold Toxcity. Does anyone know anything about it?
Thanks,
Sundance

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@elisabeth007

So sorry you are going through this. ask your lawyer. DIY tests
likely will not suffice for litigation purposes.

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There’s a company online that specifically dues urine mold toxicity tests but it’s like $600🤦🏻‍♀️ may have to figure it out

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@gigi4

Happy to answer you with my experience. I had been dealing with digestive issues and my doctor was treating me for that as well as fatigue as I have Hashimoto’s. I was feeling better and better. Then my symptoms returned. I had been following my doctors plan carefully, so she suspected I may have exposure to mold. But there are numerous symptoms to mold toxicity- runny nose, coughing, itchy eyes or skin, brain fog, lung infections, shortness of breath, dry skin.
My doctor asked me if we had had water leaks in our home and we had 3 known leaks and one unknown we were not aware of. We did not notice any smells or see any mold anywhere. So I was tested but she also said we needed to have our home tested. Otherwise treatment would not be successful because I would continue to be exposed to mold spores.
What you smell under the sink is highly likely mold.
If I were you, I’d find someplace else to live if possible. Since you are renting, the owner may not be agreeable to doing anything to have the trailer tested and then have the trailer cleaned up. It can be expensive depending on how much of the trailer has mold growing in it.
And I recommend you get tested for mold toxicity and for other reasons that may be causing your symptoms that have increased over the 3 years.
I hope this info helps. Take care.

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How were you tested for mold toxicity? Which doctor did it? I can’t seem to find anyone who can help.

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@roxfirez

How were you tested for mold toxicity? Which doctor did it? I can’t seem to find anyone who can help.

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I have been seeing a functional medicine doctor. These kinds of doctors look for the cause of symptoms. Prior doctors I had seen treated my symptoms with pharmaceuticals. When I went off, my symptoms returned.
Testing included a blood test and a urine test, checking for mycotoxins and antibodies.
You can look for a functional medicine doctor on ifm.org. You can search by city and state. Look at biography info as each doctor lists what they specialize in.
Feel free to get in touch with me if you have other questions.
Best to you. I understand.

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@roxfirez

How were you tested for mold toxicity? Which doctor did it? I can’t seem to find anyone who can help.

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Have you contacted the state department of health where you live?

Here is a Web Site that may offer resources near you:
https://getmoldtested.com/National_Directory.php
Finally, mail in tests are not likely to be of value in getting treated - here is information about the complexity of figuring out which mold exposure is causing your symptoms:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8982061/
Generally, where are you located?
Sue

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@lillybet

You have no idea how long I’ve researched. I finally found something just today. That’s how I found this page.
I’m so toxic but doctors think I’m crazy. My test by them come back negative.
Everyone believes I’m crazy. I agree people would think I’m crazy. So now I don’t tell anyone nothing. I just live life like this. I have no means to pay for mold testing and it’s a 1966 trailer. Don’t look bad. But it’s killing me.

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I'm so sorry to hear this. How are things now?

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@becsbuddy

You seem to have gather up quite a bit of information on toxic molds @glenb . Thank you for coming to MayoClinicConnect! We try to share information and support about our various health journeys. Can you tell me what symptoms you experienced and how the doctors finally diagnosed you?

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Omg I have mold toxicity for 6 months now carrying 2 different mold types and did a home air quality test and sent to lab and have 3 different molds in my apartment. I have been to ER, immediate care and my regular doctor and they all think your crazy! I seen a different doctor in the office that finally tested me for mold after I seen my dermatologist that did blood work and found I tested positive for ANA. I had a tree come thru my roof last year which caused water damage. I haven't been able to work so I'm looking at losing my apt. but I'm unable to live in it, Im staying in building across from it with a friend. I'm so tired of being sick I feel like I'm dying sometimes. I've lost 10lbs. and the only thing Dr. has treated me for is yeast infections. No one has ever told me what foods I shouldn't eat or anything. I just keep doing research cause these people have no idea what we are going through. I leave drs office crying everytime I go and they give me medicine for anxiety and depression! Please help me I can't do this for my ch longer can't they just build my immune system up to where it's able to fight this fungal infection??

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@cld07

Omg I have mold toxicity for 6 months now carrying 2 different mold types and did a home air quality test and sent to lab and have 3 different molds in my apartment. I have been to ER, immediate care and my regular doctor and they all think your crazy! I seen a different doctor in the office that finally tested me for mold after I seen my dermatologist that did blood work and found I tested positive for ANA. I had a tree come thru my roof last year which caused water damage. I haven't been able to work so I'm looking at losing my apt. but I'm unable to live in it, Im staying in building across from it with a friend. I'm so tired of being sick I feel like I'm dying sometimes. I've lost 10lbs. and the only thing Dr. has treated me for is yeast infections. No one has ever told me what foods I shouldn't eat or anything. I just keep doing research cause these people have no idea what we are going through. I leave drs office crying everytime I go and they give me medicine for anxiety and depression! Please help me I can't do this for my ch longer can't they just build my immune system up to where it's able to fight this fungal infection??

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@cld07 Welcome to Mayo Clinic Connect. You certainly have listed some difficult problems. I entered the link where @sueinmn explains some places you can find help with the mold problem:
https://connect.mayoclinic.org/comment/1080960/
Do you have family nearby who could put you up while you work out this problem?
Who are you going to contact first thing tomorrow?

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