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Who else has Autonomic Neuropathy?

Posted by mstephen @mstephen, Mar 25, 2018

The Mayo Clinic in Phoenix diagnosed me with Autonomic Neuropathy in 2014. I don't see any reference to that form in any of the information or discussions. I know it effect's my balance, body temperature variance and possibly thinking. Any one have this diagnosis? Seems to be worsening as I age.

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sharon1943 | @sharon1943 | Jun 10 2:46pm
In reply to @gregoria "Hi, I have laso been suffering a lot , my sfn started in legs and progressed..." + (show)
@gregoria

Hi, I have laso been suffering a lot , my sfn started in legs and progressed to hands, I have erythromelalgia , digestive disconfort, pain, extreme fatigue, and lately my salivary glands are also malfunctioning, I feel extra salivation all the time and its a little bit and I have to swallow fast all the time to avoid drooling. Anybody has this wierd sensation??? I Will be having some tests , sudoscan I guess and tilt table, last time they all turned out fine,I all started in 2019, anybody having problems with saliva?? My fatigue IS also increasing, I feel lousy.

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I have gag reflex problems, active all the time. Have to brush my teeth dry, leaning far forward. A pain inn the neck but better then a continous gag. Live with problems individually.

REPLY
meg40 | @meg40 | Nov 19 6:01pm

Autonomic neuropathy is also known as dysautonomia. The most common type of dysautonomia, such that there may have been more research and funding to identify it, is Postural Orthostatic Tachycardia Syndrome (POTS), but that does not encompass all of the different types of dysautonomia and symptoms that may go along with your personal diagnosis. Your doctor should have hopefully provided some support group information after your testing and diagnosis along with a symptom management plan.

REPLY
hemaro | @hemaro | Nov 27 2:47pm

Hello all!
I was diagnosed with diabetic autonomic neuropathy when my toes had to be amputated approximately 2 years ago.
For that time my symptoms were tolerable, and I did not pay much attention but like 2 months ago the symptoms
have been escalating to the point of unbearable.
Now I experiment an extreme pain in my whole body from head to toe.
I can barely walk or stand up for only 15 minutes at a time and have reduced cognitive function.
Everything hurts even when wearing clothing.
I have no appetite and when I eat I can not digest food properly due to pain in the stomach muscles.
Other symtoms include: Bladder control, tremors. difficulty breathing, feeling cold all the time, Irregular heartbeats, fainting, loss of vision, electric zaps in the brain, permanent headache and a few more.

I ask this community what supplements or medications that can help at least with the autonomic pain?
Thank you all!

REPLY
1 reply
harley22 | @harley22 | Nov 28 12:24pm
In reply to @hemaro "Hello all! I was diagnosed with diabetic autonomic neuropathy when my toes had to be amputated..." + (show)
@hemaro

Hello all!
I was diagnosed with diabetic autonomic neuropathy when my toes had to be amputated approximately 2 years ago.
For that time my symptoms were tolerable, and I did not pay much attention but like 2 months ago the symptoms
have been escalating to the point of unbearable.
Now I experiment an extreme pain in my whole body from head to toe.
I can barely walk or stand up for only 15 minutes at a time and have reduced cognitive function.
Everything hurts even when wearing clothing.
I have no appetite and when I eat I can not digest food properly due to pain in the stomach muscles.
Other symtoms include: Bladder control, tremors. difficulty breathing, feeling cold all the time, Irregular heartbeats, fainting, loss of vision, electric zaps in the brain, permanent headache and a few more.

I ask this community what supplements or medications that can help at least with the autonomic pain?
Thank you all!

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I wish I could help but I can’t even help myself.

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