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Why Camzyos instead of surgery?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 5 days ago | Replies (31)Comment receiving replies
Hi @joycehocm, Thanks for updating the group about your visit! Have you had a chance to read some of the posts here on Connect regarding Cardiac Amyloidosis? There a many posts, and this is from awhile ago but very informative:
https://connect.mayoclinic.org/discussion/amyloidosis-2/
Here's one from John Hopkins (where you just were!):
https://www.hopkinsmedicine.org/health/conditions-and-diseases/cardiac-amyloidosis
And another from Mayo Clinic:
https://www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes/syc-20353178
You are well on your way to getting the right treatment, but it still must be a bit overwhelming having to go through all this testing. It's in your best interests to rule out anything else it could be, so trust in the process would be my advice!
When is your next appointment to rule out amyloidosis?
Do you see your cardiologist after the testing is done?
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Hi and thank you so much for this valuable advice. I had a heart biopsy about 10 days ago and got all the results by last Thursday and the cardiologist from Hopkins called today. I have no amyloidosis - and am very grateful for that. I do have an obstruction as I knew and a high gradient and pressures (not sure how to describe this). The doc is starting out with a calcium channel blocker called verapamil and jardiance. And then we will see how well I tolerate those and whether or not I move on to Camzyos. He said the obstruction itself was not large but the gradient was 60.