Severe spinal stenosis

Posted by katie215 @katie215, Aug 15, 2020

Age 71yo old gal here. L5S1 autofusion, Grace II spondylolisthesis. Severe spinal stenosis complicated by significant impingement L5 nerves, both foramen caused by loss of foramenal height. Extensive spurring. Surgery ruled out due to possible need to refracture autofusion.

Ergo, surviving with opioid "cocktail", gabapentin, +++twisting, burning, stabbing pain, both calves and thighs, 24/7.

Very cooperative helping husband but wearing thin on perseverance here. Cannot imagine another 10+ years of this with a brain that's operating at warp speed.

Perhaps there is someone somewhere sharing these same issues looking at same future.

Interested in more discussions like this? Go to the Spine Health Support Group.

Profile picture for willow5 @willow5

Hi Joe,
Even though my surgery is delayed, I did ask the doc, after the surgery can i bike, will I have any limitations, and he said no limitations. L5-S1, and possibly fuse I think it was 3/4.

Awesome you can walk! I have pain after 1/2 mile walking. I just turned 72. Since my surgery got put off by six months, I’m going to check out some other options, acupuncture, mind/body type stuff, meditation for pain control. It won’t fix anything for sure, but to learn to handle the pain maybe i can put off the surgery longer - maybe. So confusing!! Oh, if the pain is low back, medicare does pay for acupuncture.

Best of luck. This forum is so helpful and I love that mostly no one plays doctor.

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That's an optimistic outlook Willow, thanks. And all the best to you on the upcoming surgery.

I've had sciatica twice. The first was from a herniated disc and that eventually resolved, but the back of my left leg - hamstrings mostly and calf - would get stabbing pain that was very hard to live with. It seemed to abate when I laid down so sleeping was ok. It resolved after about two months.

The second attack of sciatica was on my right side. This time part of the disc at S1/L5 had ruptured and was "floating" in my spinal canal. I had surgery to remove the ruptured disc material and smooth out arthritis spurs in the spinal canal (laminotomy).

That was all well over 10 years ago. We moved and I have a new surgeon. He said I have a strong core muscle group and that is holding my lumbar spine together. He also said if sciatica comes back, I'll need fusion.

I'll certainly get that done, but don't look forward to it. But thanks for the optimistic news about returning to life without restrictions. I love spinning and would like to keep at it.

Thanks again Willow and all the best!

Joe

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Profile picture for jenatsky @jenatsky

@cdbm spinal stenosis doesn’t get any better only worse over time. And you have the accompanying stuff too. Not too many surefire treatments but I just found this one you might want to look at with a 60 day money back guarantee and FDA approved. I have SS but not that bad yet. Yes my back is stiff in the morning but that’s par for the illness.
I opted to purchase the device after reading reviews and I will add my 2 cents about the product one I use it.

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Hi,
Thanks for a reply. What device are you referring? I have tried TENS ( electrical muscular stimulation) and it works very well. My unit is old so in the market for a new one.

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Profile picture for cdbm @cdbm

Hi,
Thanks for a reply. What device are you referring? I have tried TENS ( electrical muscular stimulation) and it works very well. My unit is old so in the market for a new one.

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Checkout NeuroMD on web

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Profile picture for mick472 @mick472

I was just diagnosed a couple months ago with lumbar spinal stenosis. I have good days and uncomfortable days. I am not in severe pain, but very limited on what I can do so I don't aggravate it. But, I am having a terrible time upon wake up for some reason. I have to hold on to doors, wall whatever, as I can hardly walk. It eventually subsides as I take a anti-inflammatory and hang on in a hot shower for about 20 minutes. Does anyone have this problem or better yet a routine at night to help prevent this in the AM?

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For all of the people on here experiencing pain from a compromised spine (well, that's everyone) - I learned recently that stress from chronic pain can increase the resting heart rate. Stress from pain causes the body to produce more cortisol, and this affects the heart.

I'm not a huge fan of supplements, but one that I've taken in the past has worked, l-theanine. It's supposed to help calm and reduce stress. I'm not sure that it made me feel a lot better, but it did seem to ease my stress levels.

Getting good quality supplements can be a challenge. I buy all of mine from Pure Encapsulations. These are expensive, but they do seem to be of high quality.

http://www.pureencapsulations.com

All the best to all of you!

Joe

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Profile picture for mick472 @mick472

I was just diagnosed a couple months ago with lumbar spinal stenosis. I have good days and uncomfortable days. I am not in severe pain, but very limited on what I can do so I don't aggravate it. But, I am having a terrible time upon wake up for some reason. I have to hold on to doors, wall whatever, as I can hardly walk. It eventually subsides as I take a anti-inflammatory and hang on in a hot shower for about 20 minutes. Does anyone have this problem or better yet a routine at night to help prevent this in the AM?

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haha - I'll play doctor then - (but its common sense ;-). the reason you have problems in the morning (as most of us do - is because your body has been laying horizontal all night and the fluids back up. When you wake and transfer to a vertical position the fluids are needing to reposition and redistribute themselves. It takes 45 minutes (average) for this to occur. Weather/barometric pressure change exacerbates my problems as does cold. Also, food/alcohol can wreak some havoc. We are 96% water and that has an impact. My suggestion would be for you to check out the weather and salts you may consume. I have edema. That is also a problem as too much salts retain extra water putting pressure on my joints. Try to increase your circulation throughout the day (a little walk several times) so when you go to bed it won't be as bad in the morning. Also, gentle self-massage before bed and definitely upon waking. Stretch what you can, and you will be able to stretch more as days go by. Alcohol is a trigger as it dehydrates you and then your body rushes while sleeping to normalize your moisture balance. Stenosis is the channels getting smaller to push your bloodstream through. If you have edema, like I do, it is more difficult because there is more pressure on the stenosis joints when you sleep upon waking. Self massage really helps. Get some periodic acupuncture in if you can afford it - it keeps the circulation moving.

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Profile picture for mick472 @mick472

I was just diagnosed a couple months ago with lumbar spinal stenosis. I have good days and uncomfortable days. I am not in severe pain, but very limited on what I can do so I don't aggravate it. But, I am having a terrible time upon wake up for some reason. I have to hold on to doors, wall whatever, as I can hardly walk. It eventually subsides as I take a anti-inflammatory and hang on in a hot shower for about 20 minutes. Does anyone have this problem or better yet a routine at night to help prevent this in the AM?

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Would love to know your self massage techniques

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Profile picture for nancyeburford @nancyeburford

Would love to know your self massage techniques

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here are a bunch! I didn't know if you like to read them or watch videos so you can choose what you like: https://www.google.com/search

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Profile picture for mick472 @mick472

I was just diagnosed a couple months ago with lumbar spinal stenosis. I have good days and uncomfortable days. I am not in severe pain, but very limited on what I can do so I don't aggravate it. But, I am having a terrible time upon wake up for some reason. I have to hold on to doors, wall whatever, as I can hardly walk. It eventually subsides as I take a anti-inflammatory and hang on in a hot shower for about 20 minutes. Does anyone have this problem or better yet a routine at night to help prevent this in the AM?

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Hey Mick hope you are feeling better. I have spinal stenosis as well.

When you say it is noticeable when you get up, what are your symptoms? When my stenosis got bad, it pinched the sciatic nerve causing stabbing pain in my hamstrings and calf, only on one side.

My point is that stenosis is rarely felt at the origin in the lower back. It usually squeezes a nerve in the spinal canal, causing pain in the back of the legs and buttocks.

The best thing to do for arthritis pain is to ice the joint, in this case the lumbar spine. Don't apply heat as it draws in blood and worsens inflammation.

I did have a laminotomy about 10 years ago to file off some of the arthritis inside the spinal canal. That's a conservative approach. Fusion is also a possibility. I haven't had it (yet) and it would be a last resort.

All the best to you. Joe

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Profile picture for mick472 @mick472

I was just diagnosed a couple months ago with lumbar spinal stenosis. I have good days and uncomfortable days. I am not in severe pain, but very limited on what I can do so I don't aggravate it. But, I am having a terrible time upon wake up for some reason. I have to hold on to doors, wall whatever, as I can hardly walk. It eventually subsides as I take a anti-inflammatory and hang on in a hot shower for about 20 minutes. Does anyone have this problem or better yet a routine at night to help prevent this in the AM?

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Yes, yes I do. Thank you for asking.

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Profile picture for bayhorse @bayhorse

Did you find that acupuncture helped significantly? I have severe stenosis and cannot take a lot of pain relievers because of side effects.

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i too have severe stenosis. active release therapy , done by a chiropractor, has saved me. it’s reduced nerve pain substantially and got me back walking without pain. not sure how far cuz i’m only three sessions in. but boy has it been a lifesaver as i was wracked with pain for over a month.

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