Does anyone have Spinal Stenosis that is extremely bad at wake up?

Posted by mick472 @mick472, Sep 26 11:54pm

I was just diagnosed a couple months ago with lumbar spinal stenosis. I have good days and uncomfortable days. I am not in severe pain, but very limited on what I can do so I don't aggravate it. But, I am having a terrible time upon wake up for some reason. I have to hold on to doors, wall whatever, as I can hardly walk. It eventually subsides as I take a anti-inflammatory and hang on in a hot shower for about 20 minutes. Does anyone have this problem or better yet a routine at night to help prevent this in the AM?

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@devaallen

Yes, I can barely walk sometimes. I was married about a week ago. Waking up in so much pain almost derailed my entire life. I was determined to walk on my own with no assistance or cane. I hope you feel better soon.

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Congratulations on your marriage. Welcome!

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I also have spinal stenosis along with collapsed discs.
My morning wake up is just like yours.
Does get bearable after an hour or so.
I am having an MRI because I am now
experiencing a lot of numbness in both legs.
Will be seeing my pain specialist after MRI.
Hoping epidurals help.
I take gabapentin and Tylenol.
I am allergic to anti inflammatory meds.

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@galesr

I had that a few years ago. I had the surgery and was awesome after. If it gets real bad I would highly recommend it.
Sue

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can you expand a little on your surgery?
I had surgery in 1994 that did not go well.
Sounds like you are much better. Awesome.
I am 82 so don't know if they would consider.

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@jenniferhunter

@devaallen I just wanted to welcome you to Connect. Congratulations on your marriage.

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Thank you. 🙏🏽

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@heyjoe415

Sorry about the name mixup Willow.

I’m 70 with a disaster area in my lumbar spine. I don’t have sciatica now, but my walking is affected. Back is very stiff after getting up.

I spin 5 times a week. Guessing I’d need S1 L5 and L4 fused. I hope I can resume that if I have fusion.

I recently tried orthotics from goodfeet.com - my gait is straight and walking is easy. Just turned 70.

Suggestions? Will fusion still allow me to spin?

Thanks Willow and all!

Joe

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Hi Joe,
Even though my surgery is delayed, I did ask the doc, after the surgery can i bike, will I have any limitations, and he said no limitations. L5-S1, and possibly fuse I think it was 3/4.

Awesome you can walk! I have pain after 1/2 mile walking. I just turned 72. Since my surgery got put off by six months, I’m going to check out some other options, acupuncture, mind/body type stuff, meditation for pain control. It won’t fix anything for sure, but to learn to handle the pain maybe i can put off the surgery longer - maybe. So confusing!! Oh, if the pain is low back, medicare does pay for acupuncture.

Best of luck. This forum is so helpful and I love that mostly no one plays doctor.

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Sometimes (not often enough) I do knees to chest and childs pose before I get out of bed. Not sure why it’s so hard to do the things that help me through the day.

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I have mild stenosis and some scoliosis and let’s not forget arthritis. The morning wake up is painful. I try slow trunk twists and stretching before leaving the bed.
Then, see if I can actually walk. The pain and numbing pain can take its time subsiding enough to get to bathroom.
I don’t take drugs for it on a regular basis. I do have a low dose pain pill that I may take 1-2 times a month. The pain doesn’t go away and can increase during the day or not. I try to stay mentally engaged and live my best life in the moment. It sucks but I don’t like the alternative of being chronically depressed.

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@cdbm spinal stenosis doesn’t get any better only worse over time. And you have the accompanying stuff too. Not too many surefire treatments but I just found this one you might want to look at with a 60 day money back guarantee and FDA approved. I have SS but not that bad yet. Yes my back is stiff in the morning but that’s par for the illness.
I opted to purchase the device after reading reviews and I will add my 2 cents about the product one I use it.

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@willow5

Hi Joe,
Even though my surgery is delayed, I did ask the doc, after the surgery can i bike, will I have any limitations, and he said no limitations. L5-S1, and possibly fuse I think it was 3/4.

Awesome you can walk! I have pain after 1/2 mile walking. I just turned 72. Since my surgery got put off by six months, I’m going to check out some other options, acupuncture, mind/body type stuff, meditation for pain control. It won’t fix anything for sure, but to learn to handle the pain maybe i can put off the surgery longer - maybe. So confusing!! Oh, if the pain is low back, medicare does pay for acupuncture.

Best of luck. This forum is so helpful and I love that mostly no one plays doctor.

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That's an optimistic outlook Willow, thanks. And all the best to you on the upcoming surgery.

I've had sciatica twice. The first was from a herniated disc and that eventually resolved, but the back of my left leg - hamstrings mostly and calf - would get stabbing pain that was very hard to live with. It seemed to abate when I laid down so sleeping was ok. It resolved after about two months.

The second attack of sciatica was on my right side. This time part of the disc at S1/L5 had ruptured and was "floating" in my spinal canal. I had surgery to remove the ruptured disc material and smooth out arthritis spurs in the spinal canal (laminotomy).

That was all well over 10 years ago. We moved and I have a new surgeon. He said I have a strong core muscle group and that is holding my lumbar spine together. He also said if sciatica comes back, I'll need fusion.

I'll certainly get that done, but don't look forward to it. But thanks for the optimistic news about returning to life without restrictions. I love spinning and would like to keep at it.

Thanks again Willow and all the best!

Joe

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@jenatsky

@cdbm spinal stenosis doesn’t get any better only worse over time. And you have the accompanying stuff too. Not too many surefire treatments but I just found this one you might want to look at with a 60 day money back guarantee and FDA approved. I have SS but not that bad yet. Yes my back is stiff in the morning but that’s par for the illness.
I opted to purchase the device after reading reviews and I will add my 2 cents about the product one I use it.

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Hi,
Thanks for a reply. What device are you referring? I have tried TENS ( electrical muscular stimulation) and it works very well. My unit is old so in the market for a new one.

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