Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Posted by Tracy Lynne Daley @tracylynnedaley72, Jul 23, 2015

My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone tell me if anyone in this support group has been diagnosed and/or treated for acoustic neuroma, a benign tumor affecting the acoustic nerve, which is the eighth cranial nerve in your brain? This nerve is connected to your ear. These tumors initially affect a person's balance and hearing and then other symptoms may appear. This is a very rare tumor and one out of 100,000 people and 8-9% of the intracranial tumors. If no one has heard of this tumor, I understand.

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@lavmaul2018

I had a brain mri in fall of 2022 MRI showed a small acustic schwannoma , so six months later it grew and the doctors did not want me to go through extensive surgery in my mid 70' . So gamma knife procedure in mid 2023. Had grown a bit again but center crystalizing . My balance is so off, next MRI in Jan 2025.
Im scared

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@lavmaul2018, I can imagine you're scared. Has the balance worsened recently? Have you told your neurologist about your concern?

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