Osteoporosis and Forteo (teriparatide): What to hear experiences
Wanting to hear people’s experience with using Forteo generally , good and bad. Concerned about having to travel and keeping it at the 36-46F range. Also would like to hear from those that used it 15-20 years ago and if any medical issues have come about that are related to Forteo.
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I had 13 compression fractures before starting Forteo. I completed the full 24 months and have not fractured since. Now, 7 years later I have just started the generic version of Forteo and will do that for 6 months and then Evenity. Forteo shows bone growth at 3 and 6 months, so I am hopeful!
Good to hear it works. thank you.
I took Forteo for one year and one month. I had a mere 7% increase in spine bone density and sadly, I lost bone density in my hips. I went from -2.5 to -2.7. Needless to say, very disappointed. Now I'm on Tymlos for the next 11 months and am hoping for much better results.
I have traveled frequently with Forteo and haven't had a problem. It will be fine for several hours without refrigeration.
I was on Forteo for 13 months. Once in a while, I would get random pains, nothing unbearable, just a little uncomfortable, in different parts of my body (shin, arm, foot). Other than those, there were no other side effects. I was nervous to start taking it, given what I had read. But like my doctor said, "If that happens, you'll stop taking it."
7% is significant. Was your Dexa with the same machine as last time?
It was with the same facility; I can't be sure if it was the same machine. I'm more disappointed in the loss of hip bone density. And I don't think 7% is significant enough, especially with the hip loss
7% is below the median gain of 9.7%, but it's not too bad. From the FDA sheet:
"Seventy-two percent of patients treated with FORTEO achieved at least a 5% increase in spine BMD, and 44% gained 10% or more."
That's after 18 months of treatment. So, 7% after 13 months doesn't sound unreasonable.
I'm hoping for a better result with the Tymlos, especially for the hips.
I recently experienced my first travel experience with Forteo and it was challenging.
I shopped for travel coolers, and after the hassle of the 4Allfamily website (intrusive, having to answer personal questions before allowing access to shopping, difficulty with the site in general), I opted to order a travel cooler with built in digital thermometer from eBay. The batteries were finicky, and I shopped at 4 different stores for replacements (just in case!) but wasn't able to find the right size.
It was a short flight from Sacramento to SanDiego, but by the time I got to my hotel the temp had exceeded 46 degrees even though it was within the time limit. My hotel refrigerator wasn't cold enough according to the extra analog thermometer that I had brought, so the maintenance person came to my room and his thermometer said it was actually cooler. The ice packs had to be stored in the hotel freezer because the room fridge didn't have a freezer. blah blah blah, it was a hassle! Then when we checked out, we had an afternoon on our own so the hotel kept the Forteo in one fridge and the ice packs in another! etc. I would love to hear from someone who has had better success so I can more successfully travel again.