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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Dec 16 10:30pm | Replies (808)Comment receiving replies
Replies to "I may be starting and have concerns too. Have you experienced any side effects such as..."
Hi @junecc . You didn't specifically ask me about this but I will chime in anyway. I started Camzyos just over a year ago at age 59. I have never had any side effects whatsoever. I've been on Omeprazole for something like 10 years. I **think** both Tagamet and Omeprazole are used to treat the same kinds of problem. Omeprazole was one of the medications explicitly referred to in the Camzyos warnings. I had several conversations with my cardiologist, my pharmacist, my family doctor and my Camzyos REMS program nurse case manager, and all of them advised that, in my case, I could continue the Omeprazole while taking Camzyos but that I should (i) watch out for any problems - of which there have been none - and (ii) take the Omeprazole in the morning and the Camzyos at bedtime. I have no medical expertise and you should not take this as advise for you - listen to your experts, not the internet - but in my case there have been no issues except that I am no longer allowed my beloved grapefruit. Good luck with your treatment!
I am on 15 mg of Camzyos and have had minor side effects. Having a team monitor all medicines you are taking and how you are feeling really makes the process easier. For instance, at one point I began experiencing arrhythmia and the nurse advocate adjusted another medicine I was taking (metoprolol) and instantly I had relief. Camzyos has changed my life. I couldn't walk up a hill without stopping for a breath. Walking up hills isn't daunting for me anymore. I hope you get the care you need and attain great results as I have!
Still feeling great on camzyos after 2 years and 5 months on 2.5mg. No side effects to date. I take 3 generic meds for pressure, rate, and cholesterol. No other meds so no restrictions or reactions. Regarding costs and insurance arrangements, my cardiology support staff took care of setting that up along with the required clinical documentation. An experienced team with HOCM should know how to get that done.
Being older and on Medicare helps. This and a combination of a private Medicare Rx supplement I had, BMSquib, Healthwell Foundation, and CVS Specialty pharmacy got it done. This was all coordinated by my cardiology team with a little online paperwork by myself.
Blessings and God's speed.