What does my dentist need to know about my NETs?
I need to go to the dentist
I think EPI is something that can cause issues
Anyone have any suggestions or comments
Thank you
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
I just went last week. On lanreotide but dentist was not concerned.
Hope that helps
Thank you so much for the reply
I have been going to my dentist for the past year or so and just went this week. They have gone over my health history each time I’ve gone in but there haven’t been any concerns.
Thank you everyone for replying
My oncologist contacted the dentist and told him under no circumstances can I get epinephrine
Why? I haven't heard that.
I don’t know why However
However I have learned you need to do research everything before you do anything
There is a lot of information out there
I have been with the Mayo group chat for 5 years and honestly I owe them my life
Be well
Epinephrine can over-activate hormones that cause various rhings in us folks who have neuroendocrine issues. There are alternatives to epinephrine available.
At 50 I had a right hemecolectomy. 2 years ago was told it spread to my liver (i have several). Tested every 6 mths. Have been told its grown minimally. Too small to start the shot. I am now 57. Does any one else have diarrhea on a daily bases no matter what u eat? How about hot flashes? Can't tell if it's post menopausal or from NET. Thank you
I just joined yesterday. Thank you all for your responses. Learning more and more.
They call the disease Zebras because no 2 are the same
I never had a hot flash through menopause
Now if I over do I suffer with hot flashes
I do get diarrhea but not on a daily basis and doesn’t matter what I eat it just attacks me
I am 70 at 65 I had a liver resection and for about 2 years I was good
Then I got scanned and found that it metastasized to my liver from an unknown origin as soon as that happened I started Lanreotide than Ocreotide as well as a lot of in between treatments
I believe the only way to stay ahead of it is to be smarter research and options from a bunch of specialists
Good luck