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DiscussionHeart Rhythm Conditions – Welcome to the group
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Replies to "Hi I'm Sarah, I was just recently told I might have Afib. I was born with..."
Sarah I declined meds 10 years ago and have diltiazem and Eliquis as "pill in the pocket" options for when needed. I am fortunate, since I have an episode about once a year, though they do land me in the ER via ambulance due to low bp. I have taken diltiazem at home maybe three times and have never done Eliquis. The ambulance does a diltiazem bolus and the ER does a drip.
I have been taking magnesium 600mg/night for years, and drink low sodium V-8 for potassium (cans are over 1200mg, I have gone down a bit on the level). Calcium 800mg (I can't eat dairy). I never eat after 5 or 6, never recline after eating, take Gas-X (simethicone) if I am gassy, avoid heavy lifting, do tai chi for stress, walk every day, and have some Klonopin on hand when I get a certain feeling (rarely, and I take 1/4). I also avoid loud alarms! I have accumulated these methods after identifying triggers over the years.
I use a Kardia and two years ago did a patch monitor to make sure I wasn't having undetected afib- none at all in two weeks though some brief and rare SVT, PVC's and bradycardia.
After years of this I found cardiologist John Day's book "The Afib Cure" (co-author is also a cardiologist) that discusses finding your triggers and avoiding them, as well as any other lifestyle changes needed. They also discuss supplements and meds.
My first cardiologist wanted to put me on blood thinners and beta blockers in 2015. My CHADS score was kind of borderline and still is. When I turn 75 I will have more pressure to go on blood thinners and if episodes increase, I will of course. I do not expect to be different in terms of things getting worse at some point but I have been able to hold the line for 10 years- probably some luck!
That first cardiologist later told me that I was right to decline. We always had good discussions and it isn't like we ever argued, but it was nice that he said he had been thinking that he had maybe been overmedicating. My feeling is that doctors have a whole lot less liability if they medicate than if they don't.
Your situation may be entirely different from mine. I am a lay person and fellow patient and only sharing my experience which may not apply. But I do suggest buying "The Afib Cure" which is a pretty balanced discussion despite the title. Also, @gloaming knows his stuff so definitely read his posts carefully!
Sarah, I know of people who have to limit their exercise, not do more of it. I know a person who must watch calcium from all sources, and because he is a 'magnesium dumper', he must ingest a lot of it, up to 800mg daily in one of his concoctions or another in order to keep free of AF and also drug free...which he is with a 20 year history of managing his AF that way.
Some can't do caffeine, some alcohol, some not get indigestion....it goes on and on and on... Each person must forge a pathway for themselves through the electrically disordered heart of theirs.
While diet may help, especially if you tend to be hypomagnesic or hypokalemic (low magnesium and low potassium), low iron might also be a problem, and you need to find out occasionally through blood panels if you are one of those who needs to watch, or to actually change, their diets. Even anxiety and stress of money, relationships, local noisy construction,...all sorts of things can make a heart fibrillate.
As for the medications, I was widely read about all of the ones prescribed for my own case of AF, including the dreaded amiodarone (which I was obliged to take after a failed index ablation). None of 'those things' happened....to me. Others report a helluva time as soon as they get enough of a new drug circulating in their system. This goes for statins as well. Again, it's gonna be YOUR journey, and your story afterwards....whatever it is to be. I hope it isn't a horrible experience for you. My symptoms when in AF was much worse than anything I could imagine experiencing with amiodarone or metoprolol. So, I chose to be optimistic, to trust the experts, to be informed, and to take the darned drugs.
One final note. If one drug fails to do what you need it to do, ask for another option and give it a decent trial, at least two weeks with doctor's approval and guidance. Unfortunately, there is a tendency for the rate control and rhythm control drugs to lose their effect over time. This means increased dosages, and that can bring on other problems, or you must try either another drug or a mechanical repair such as catheter ablation. I have had two of the latter. The workups, and all the appointments, and travel, are, to me, worse than the actual catheter ablation. It's a day procedure, and next day you are fine and walking, if being careful about heavy lifting and overdoing it. After my second ablation, I have been in normal sinus rhythm (NSR) for coming up to 2 years. All the workups, all the meetings, all the unsettling symptoms, the anxiety....all gone.
Please consider reading up on the drugs. The FDA had Vioxx removed because a few people developed heart problems. My female clerk at the Canadian National Defence Headquarters found it a godsend for her arthritis, and was sickened when she realized she could not acquire it any longer. She and many tens of thousands.