Does anyone suffer from Crohn's or colitis?

There is certainly more to it than that. And I would suggest anyone interested do more research than that. However, if you are using opiates you can not use LDN. It will render them inaffective. Even surgical situations need to be thought about carefully. There is a lot to learn. BTW: LDN doesn't have any of the effects on the body like morphine and you can't overdose on it. And a Dr. doesn't have to any specially training to perscribe it.

Update: All was well on this course of Budesonide - round two for me. But 11 days after I tapered off I relapsed again. So I’ve begun round three at minimal effective dose (3mg/ day). I follow up with him in a month to describe status.
So back to low fiber, fat, and sugar …I’m thinking i will be on maintenance dose of this forever.
If it keeps working.

I have had collagenous colitis for 8 years (celiac for 15). I had 3 months of flares this summer due mostly to high stress and being on low-dose Lisinopril (Ace II) for (new) chronic kidney disease, not blood pressure. I'm 70 and collecting diseases is not a good hobby. The flares tailed off a couple of weeks off the Lisinopril. I've never taken meds for the colitis (partly due to being sensitive to too many with microscopic colitis). I've kept a food journal for 15 years and figured out that I am sensitive to legumes, NSAIDs, gluten, and dairy. I've been low sugar/salt/processed foods for years. I have a high fiber diet; psyllium husk combines insoluble and soluble fiber that helps to bulk unformed stuff and feeds the (mostly friendly) bacteria. Stress has a big impact on GI problems so controlling that, getting enough sleep, exercise, diet, and finding things to look forward to every day is important.

I was diagnosed 5 years ago - it's a roller coaster - my advice is to get a gastro doc who is a specialist in crohns and get a good therapist who specializes is helping people with chronic disease. It's one way to manage the stress.

Please find a dr. who will try Low Dose Naltrexone. It healed my small intestine when many bouts of Budesimide wouldn't. Now several years later I am symptom and medication (except for LDN) free. And I eat almost a normal diet.

Its such a Journey. I am off nsaids, ssri, PPIs, and statins. We will see if this maintenance level dose does the trick

I have a good gastro doc and he has a lot of microscopic colitis patients. And i have had RA for 12 years. Chronic maladies take their toll.

After having ulcerative colitis for 40 years, my last colonoscopy said I'm in remission, BUT now have collagenous colitis. I think going gluten-free put me in remission from UC. But I'm not 100% gluten-free--ie., can you manage sourdough bread? And GI dr said "keep taking mesalamine" even though I'm essentially normal, bowel-wise. Collagenous colitis seems so rare, no one talks about it. I think food sensitivities are at the root of my issues, since I don't show allergic to any of the food testing. I seem to be developing some upper GI "stuff", regurgitation, etc. A frustrating disease!

Microscopic colitis is split into lymphocytic and collagenous (a layer of collagen that shouldn't be there). I make GF sourdough bread because wheat sourdough still has more than 20 ppm gluten (the limit for GF). Gluten from wheat, rye, and barley is in a lot of things. Unless they are labeled GF, soy sauce, malt, a lot of processed foods, and risk of cross contamination if a, for example GF pizza is cut on the same surface as a regular pizza. GF is equal to a tiny crumb of wheat/rye/barley flour. When I went GF 15 years ago due to celiac, my acid reflux, skin rashes, GI problems, and others disappeared (unless I get glutened). You might consider keeping a food log because when I got collagenous colitis 8 years ago I figured out I'm also sensitive to legumes, NSAIDs, and dairy. I am not allergic to wheat or dairy, but they still trigger my immune system.

There is info on collagenous IBD and other diseases in ResearchGate. Here are links: https://www.niddk.nih.gov/health-information/digestive-diseases/microscopic-colitis/definition-facts#:~:text=Microscopic%20colitis%20is%20a%20chronic,inflammatory%20bowel%20disease%20(IBD). https://pubmed.ncbi.nlm.nih.gov/24440672/#:~:text=Conclusions%3A%20Oral%20budesonide%20(9%20mg,ClinicalTrials.gov%20number%2C%20NCT00450086.

Thanks so much, @kayabbott. This is all very helpful. I did not test sensitive or allergic to gluten, never had celiac, but I blame possibly too much on the long history of ulcerative colitis, which now seems to be manifesting in a more system-wide inflammatory disease. Maybe the only thing left is for me to go more strictly GF. Good luck to us both!