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Metastatic breast cancer: Anyone else?

Breast Cancer | Last Active: Mar 12 3:44pm | Replies (213)

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@djankord1

I was diagnosed with two different cancers in my left breast in April of 2013. I felt the cancer in my nipple and knew something was wrong. I decided to have bilateral mastectomies on July 15, 2013. The 4th day, my husband took me home and within a half hour had left to go golfing. I couldn't even open a pill bottle! I should not have been surprised because he was never there when I was sick. I got lucky and didn't have to have chemo or radiation. I didn't think I would ever set foot in the Cancer Institute again. Low and behold, just 3-1/2 years later my back pain got so bad that I went to Urgent Care and from there to another doctor because they didn't know what was wrong. I found out my back is pretty much full of cancer, the clavicle, ribs spine, pelvis and some in my femur. I wish someone would have told me to watch for back pain!! So that was February of this year. I have had two rounds of radiation and was hospitalized for 3 days in May to try to get my pain under control. This was the most horrendous pain I have ever had! I was almost screaming and sobbing at the same time. I hated that my son and Mom and Dad had to see me like that. After radiation, my pain was gone for 2 months. It came back and has steadily increased, even though my CT was good in October. It seems that my morphine and Flexeril aren't doing anything for my pain now. I have been very depressed today. I go through this about every 3 weeks. I feel like I have nothing to live for. The world goes on around me and I sit in my apartment. I have heard many times, but what about your kids? I have the best kids in the world and they will live without me. I just don't want to end up like a few friends who laid in bed dying while their family watched in terrible pain.

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Replies to "I was diagnosed with two different cancers in my left breast in April of 2013. I..."

I know many Breast cancer survivors that have been living for 10 and 15 years with cancer all over their body it can be managed don’t give up you are at the right place being at mayo . There are some good private Facebook pages one is called behind the pink moon and another metivivor you should join them we get lots of support there .

Hi @djankord1
Cancer is insidious! Living with stage 4 or advanced cancer is a new reality that few know or understand.

I'd like to invite you to this discussion in the Cancer group where other members are talking honestly and openly about living with advanced cancer:
- Talking Frankly about Living with Advanced Cancer https://connect.mayoclinic.org/discussion/talking-frankly-about-living-with-advanced-cancer/

I hope you'll join us. Have you had a palliative care consult?

how do I get my comments posted?

Hi Trish @trishj
Your comment was posted perfectly. Here are detailed instructions about posting a message and more: https://connect.mayoclinic.org/get-started-on-connect/

Let me know if I can help further.