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Metastatic breast cancer: Anyone else?

Breast Cancer | Last Active: Mar 12 3:44pm | Replies (213)

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@rae3

Hi Sistie...so good to hear from you...we certainly are following a very similar path. How did iBrance fail you??? I took one round of 21 days of iBrance but my counts dropped so low and have been slow to rise. I see my onc in August and don't know what he plans to do next...continue with iBrance or try something else. Where do you live?? I am in Fort Myers, FL. Just lately I had 7 days of radiation on the tip of my nose to get rid of a basal cell carcinoma. They didn't want to use the Mohs method as my counts were so low I was in danger of infection.
I forgot to ask how long my nose will remain bright red!!!!!
So glad your brain tumor is almost gone...and I'm glad to know you are there...pink sisters...

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Replies to "Hi Sistie...so good to hear from you...we certainly are following a very similar path. How did..."

While on Ibrance my cancer progressed as shown in my PET scans and my tumor markers went up (but my dr. doesn't put much store in them). After the first two rounds at 125mg my WBC went way down as expected however they didn't bounce back after my "off week." My dose was lowered to 100mg--that's when the bad PETs started. I proposed going on Neulasta to bring my counts up so I could go back to 125mg but my doctor wasn't keen on that idea. I wonder if Ibrance might have worked if I could have taken the higher dose. I say Ibrance failed but deep down I always feel like I failed Ibrance. It's the over-achiever school girl in me. I hope your poor nose gets better. It's not like you can cover it with a scarf or a brooch. It's just there in the middle of your face. We don't need these additional insults on to of everything else.It must have been one heck of a tenacious basal cell to require that kind of treatment.
My next trial is I'm seeing a neuro surgeon on Tuesday because my T8 vertebra is gone--totally replaced with tumor which is growing into my spinal cord. Something needs to be done ASAP and I'm scared.
It's good to meet you, Rae. Keep me/us up on what going on with you. I live in Atlanta, Ga by the way.

You are stronger then you think ! I will pray daily for you, put your thoughts to God so that you are no longer alone or scared.

Thank you. You're very kind. When we get wrapped up in ourselves we forget who's really in charge.