Autoimmune diagnosis issues -Hashimotos Thyroiditis with normal TSH?

Posted by reifsny @reifsny, Jun 2, 2022

Hi,
I have been getting different diagnosis and instructions with meds/vitamins with no resolution. It started over 1.5 years ago, with extreme fatigue, weight gain, nausea, headaches, lack of energy, and brain fog. First they claimed it was all from Covid and anxiety. Then I was told maybe it’s hormonal.
After multiple tests and physicians, they said all they can find is Hashimotos Thyroiditis, which they do not treat until I have an abnormal TSH. My antibodies are extremely high, but that’s all they can find. I don’t know what else to do. Any suggestions? Thanks.

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@slkanowitz

Just FYI, TSH is low when you are hyperthyroid and high when hypo. Inverse relationship between TSH from pituitary and hormones from thyroid gland itself. Hashimotos can (not always), start out with a hyperthyroid phase lasting up to 2 years, often undetected, then turns to hypothyroid as the gland gets destroyed, a slow insidious process. Our bodies do weird things, especially our immune systems!

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Do you know that you can have Hashimoto’s without Hypothyroidism or Hyperthyroidism. I was diagnosed with both Hashimoto’s and Hypothyroidism in November of 2022. Contracted Covid in December of 2022 and lost my taste and smell. Never knew I had either of them until after having 18” of my colon removed due to severe diverticulitis and started gaining a lot of weight when I was watching my diet…had my Thyroid Levels checked and low and behold, high Hashimoto’s numbers at almost 600 when they’re suppose to be 0! I started on Synthroid and Cytomel initially and gradually weened off Cytomel as I became very jittery inside and also came down to a lower dose of Synthroid which is 100 mcg instead of 112. I am feeling better and have lost the weight.

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@slkanowitz

Just FYI, TSH is low when you are hyperthyroid and high when hypo. Inverse relationship between TSH from pituitary and hormones from thyroid gland itself. Hashimotos can (not always), start out with a hyperthyroid phase lasting up to 2 years, often undetected, then turns to hypothyroid as the gland gets destroyed, a slow insidious process. Our bodies do weird things, especially our immune systems!

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Correct! People think low TSH means HYPO and vice versa.

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