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Metastatic breast cancer: Anyone else?

Breast Cancer | Last Active: Mar 12 3:44pm | Replies (213)

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@marbar369

I also had a lumpectomy in 1989, followed by six weeks of radiation. Then in 2000, I had a mastectomy, followed by six months of chemo. I continued to go to my oncologist for follow-up visits every 3 months, then every 6 months, and then once a year. In December 2011, a blood test taken at one of these follow-up visits showed that my tumor markers had elevated, but that alone is not enough to say whether or not a tumor is present. So my onc had me do two more blood test (one a month later, and one two months later), and the TM continued to elevate. So she had me get a bone scan, a PET/CT scan, and a biopsy. After all of this, I was diagnosed with mbc, with mets to my sternum and one right rib, and started on the same treatment you are on in July 2012. It has been almost 5 years now since I've been on Xgeva and Faslodex. No one would ever know that I'm being treated for metastatic bc unless I tell them because the treatments have not interfered with my daily activities. I wish you well as you continue your treatment.

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Replies to "I also had a lumpectomy in 1989, followed by six weeks of radiation. Then in 2000,..."

Thank you so much for your post. Just yesterday I was surfing the internet to see how long Faslodex was being administered before it stopped working. I have been on Faslodex about 10 months. I think it's working well for me also. When I started on Faslodex, my tumor marker was 225, now it's 56 and has been in that range for 3 months. I really don't have any side effects. I too have no outward indications of having metastatic breast cancer. If I do something physical (rarely happens, yea) and I get tired, I just sit down. I too am on Xgeva - started monthly injections in September 2013 and now have a shot every 3 months. Big day when I have the Xgeva and Faslodex in the same day. Since September 2013 (when first diagnosed with mbc), I have had 3 bone scans and a PET scan. The bone scans are showing substantial improvement - which I think is a result of the xgeva. I love my oncologist. I really think he knows what he is doing. Best wishes to you. Really excited to read your post.