Joni I was on prednisone for 9 months and had some hair thinning and poor texture from that as well. Your treatment for EGPA should take under consideration, your prior cancer treatment. For my case, which does not include that issue, being on Nucala and getting off prednisone since August, my hair is starting to grow back and is healthier than it was when on prednisone. At my age I don't expect it to be what it once was, but better than it was on prednisone is a good thing! Sounds as if you will need to deal with that on a temporary basis whichever way your doctors help you choose. Good advice from Becky to check out the Breast Cancer Support area since it may have good ideas. Let us all know if you find something we can all try!
Best of luck in choosing what is right for you and that it will work well.
We are all in your corner, Girl!
MTH13
Hi all - I’m writing on behalf of my dad who was diagnosed with a severe case of EGPA which has made him completely blind, severe muscle pain and weakness, weight loss, neuropathy in hands and skin rashes. His doctor prescribed rituximab infusions as he tapers from high dose steroids and insurance has been denying it for the last month, and now his symptoms are worsening again. Has anyone had trouble getting their treatments approved or any advice on how to navigate that? He also started Nucala this month. You are all amazing and wishing you all the best in your healing from this.
Hi all - I’m writing on behalf of my dad who was diagnosed with a severe case of EGPA which has made him completely blind, severe muscle pain and weakness, weight loss, neuropathy in hands and skin rashes. His doctor prescribed rituximab infusions as he tapers from high dose steroids and insurance has been denying it for the last month, and now his symptoms are worsening again. Has anyone had trouble getting their treatments approved or any advice on how to navigate that? He also started Nucala this month. You are all amazing and wishing you all the best in your healing from this.
@erinman57
Welcome to Connect, hopefully other members will be able to give you some advice on dealing insurance denials. It is very frustrating when a provider has a treatment plan and the insurance company denies it.
All companies have an appeal process, if you have not done so, start an appeal. Sometimes you will need to get the provider involved to provide information that it is medically necessary.
Some states have assistance with Health Insurance issues. They may not be able to help with all insurance company, but worth looking at. In MN, it is under the Department of Commerce. I suggest doing a google search similar to "mn medical insurance complaints" substituting MN for your state.
It might help if you're willing to share the type of insurance your dad has, Medicare, Medicare Advantage, veterans, private insurance ?
Thanks so much for the reply @roch - really helpful and I’m looking into filing a complaint now. He’s in NJ, but his doctor and infusion would be in PA. He has BCBS private insurance the federal plan. Thanks again!
Connect
Connect
Like
Helpful
Hug
Joni I was on prednisone for 9 months and had some hair thinning and poor texture from that as well. Your treatment for EGPA should take under consideration, your prior cancer treatment. For my case, which does not include that issue, being on Nucala and getting off prednisone since August, my hair is starting to grow back and is healthier than it was when on prednisone. At my age I don't expect it to be what it once was, but better than it was on prednisone is a good thing! Sounds as if you will need to deal with that on a temporary basis whichever way your doctors help you choose. Good advice from Becky to check out the Breast Cancer Support area since it may have good ideas. Let us all know if you find something we can all try!
Best of luck in choosing what is right for you and that it will work well.
We are all in your corner, Girl!
MTH13
-
Like -
Helpful -
Hug
1 ReactionHi all - I’m writing on behalf of my dad who was diagnosed with a severe case of EGPA which has made him completely blind, severe muscle pain and weakness, weight loss, neuropathy in hands and skin rashes. His doctor prescribed rituximab infusions as he tapers from high dose steroids and insurance has been denying it for the last month, and now his symptoms are worsening again. Has anyone had trouble getting their treatments approved or any advice on how to navigate that? He also started Nucala this month. You are all amazing and wishing you all the best in your healing from this.
-
Like -
Helpful -
Hug
1 Reaction@erinman57
Welcome to Connect, hopefully other members will be able to give you some advice on dealing insurance denials. It is very frustrating when a provider has a treatment plan and the insurance company denies it.
All companies have an appeal process, if you have not done so, start an appeal. Sometimes you will need to get the provider involved to provide information that it is medically necessary.
Some states have assistance with Health Insurance issues. They may not be able to help with all insurance company, but worth looking at. In MN, it is under the Department of Commerce. I suggest doing a google search similar to "mn medical insurance complaints" substituting MN for your state.
It might help if you're willing to share the type of insurance your dad has, Medicare, Medicare Advantage, veterans, private insurance ?
-
Like -
Helpful -
Hug
2 ReactionsThanks so much for the reply @roch - really helpful and I’m looking into filing a complaint now. He’s in NJ, but his doctor and infusion would be in PA. He has BCBS private insurance the federal plan. Thanks again!
-
Like -
Helpful -
Hug
1 Reaction