1. < Neuroendocrine Tumors (NETs)

NET in right hilar that metastasized to heart

Posted by glbrent @glbrent, Nov 8 7:22pm

Anyone with a NET in right hilar that metastasized to heart?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Mentor
Teresa, Volunteer Mentor | @hopeful33250 | 4 days ago

Hello @glbrent and welcome to the NETs support group on Mayo Connect. I see that you have metastasis to the heart. What type of treatment is being planned?

We have one discussion group with members who discuss this topic. Here is the link,
https://connect.mayoclinic.org/discussion/has-anyone-had-nets-metastasized-to-heart/?commentsorder=newest#chv4-comment-stream-header
How was this diagnosed and how are you feeling?

REPLY
glbrent | @glbrent | 4 days ago

The treatment is Capox. Just finished first round. Had a routine (but delayed) CT scan and the tumor was found in the right hilar but has since metastasized to the heart area. Unable to get biopsy due to location but had 2 blood clots in each leg that had to be surgically removed and they were able to get biopsy from it due to cancer cells in the clot.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | 2 days ago
In reply to @glbrent "The treatment is Capox. Just finished first round. Had a routine (but delayed) CT scan and..." + (show)
@glbrent

The treatment is Capox. Just finished first round. Had a routine (but delayed) CT scan and the tumor was found in the right hilar but has since metastasized to the heart area. Unable to get biopsy due to location but had 2 blood clots in each leg that had to be surgically removed and they were able to get biopsy from it due to cancer cells in the clot.

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I appreciate the added information about your diagnosis, @glbrent. It is quite interesting that they could obtain a diagnosis from the blood clots in your leg.

How do you feel? What type of symptoms are you experiencing?

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1 reply
glbrent | @glbrent | 2 days ago
In reply to @hopeful33250 "I appreciate the added information about your diagnosis, @glbrent. It is quite interesting that they could..." + (show)
@hopeful33250

I appreciate the added information about your diagnosis, @glbrent. It is quite interesting that they could obtain a diagnosis from the blood clots in your leg.

How do you feel? What type of symptoms are you experiencing?

Jump to this post

Feeling pretty good now. No symptoms really. Was nauseous twice but nothing major.

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