Medication question

Posted by carolinemartin656 @carolinemartin656, 2 days ago

Is there anyone who has both RA and autoimmune hepatitis?
I’m at a loss. Have been prescribed Imuran for the hepatitis and it’s supposed to help with RA, but I still have major flares, daily pain.Does anyone take Imuran and low dose naltrexone at the same time?

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I've been taking immuron for 7 years . I take 150 milligrams a day it works well for me

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My only comment is with RA ( and OA) for over 35 years I have never been without pain! But prednisone ( presently 5 mg) worked best always tho addiction and now muscle atrophy has been the price. Also take methotrexate, Tylenol , IV Orencia biological, and Cymbalta. Still so much pain - good luck! Tips welcome…

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@catartist

My only comment is with RA ( and OA) for over 35 years I have never been without pain! But prednisone ( presently 5 mg) worked best always tho addiction and now muscle atrophy has been the price. Also take methotrexate, Tylenol , IV Orencia biological, and Cymbalta. Still so much pain - good luck! Tips welcome…

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Not to be nosy but are you saying that due to addiction issues you can’t take anything for pain. Because “quality of life” is important also! Forgive me if I crosses your boundary.

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Hi .,
No, no addiction issues, and it’s ok to ask. Because of the autoimmune hepatitis, I’ve been told I can only take Imuran. A naturopath suggested Low dose naltrexone for the RA but I can’t seem to find any info on taking the two medications together. Thanks for asking!

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@adlttl123

Not to be nosy but are you saying that due to addiction issues you can’t take anything for pain. Because “quality of life” is important also! Forgive me if I crosses your boundary.

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Thanks for question. I AM addicted to Prednisone due to low dose daily usage for 35 years or more. So that is now causing the muscle atrophy that RA also does. It’s frightening as I I don’t know ‘what or when’ things will go. Lost 4 glute muscles last Dec. Seo walking is hard now - got 2 Maximus tho! 😁 can go to heart, lungs, other organs too . It’s a wait and see - no cure. And still need 5mg of Pred. A day to take edge off pain. It gave me an active life - I’m grateful in spite ( Do take other RA meds too - potencies IV, methotrexate cymbals, Tylenol daily.). Do you know this condition? Never met anyone else-

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@catartist

Thanks for question. I AM addicted to Prednisone due to low dose daily usage for 35 years or more. So that is now causing the muscle atrophy that RA also does. It’s frightening as I I don’t know ‘what or when’ things will go. Lost 4 glute muscles last Dec. Seo walking is hard now - got 2 Maximus tho! 😁 can go to heart, lungs, other organs too . It’s a wait and see - no cure. And still need 5mg of Pred. A day to take edge off pain. It gave me an active life - I’m grateful in spite ( Do take other RA meds too - potencies IV, methotrexate cymbals, Tylenol daily.). Do you know this condition? Never met anyone else-

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I was on prednisone for about a year, and found it to be wonderful as far as pain reduction but it took a toll on my sleep.. have you ever tried Liw dose naltrexone for pain with RA? I’ve heard such great things about it.. maybe it could wean you off pred? Would your rheumatologist be open to talking about it?

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@carolinemartin656

I was on prednisone for about a year, and found it to be wonderful as far as pain reduction but it took a toll on my sleep.. have you ever tried Liw dose naltrexone for pain with RA? I’ve heard such great things about it.. maybe it could wean you off pred? Would your rheumatologist be open to talking about it?

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Thank you for suggesting an alternative to prednisone - I will ask RA Dr. but as much as we ALL wish I could get off pred.- especially now!, all Drs seem to think the physical addition is too hooked in - if I am LATE taking my 5mg of daily P, by late afternoon I will be in a fetal position with EVERYthing in awful pain- skin, bones,muscles, ligaments - everywhere! I have offered to go through a withdrawal medically managed program, But I’m told there isn’t any! I wasn’t told 30-40 yrs ago that it was SO addictive OR would slowly ‘eat’ my muscles if I lived long enough!( 78). It’s always worked best for RA pain- but I have never been without pain - unless I had big doses of Prednisone due to pneumonia etc. and then tapering down again was a big problem.
If there are others out there with this experience it would mean the world to me to know .
( hint - take full dose of P before noon and it shouldn’t effect sleep except at very high doses).

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@catartist

My only comment is with RA ( and OA) for over 35 years I have never been without pain! But prednisone ( presently 5 mg) worked best always tho addiction and now muscle atrophy has been the price. Also take methotrexate, Tylenol , IV Orencia biological, and Cymbalta. Still so much pain - good luck! Tips welcome…

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My husband takes Kineret injections daily. He has pseudo gout and pseudo rheumatoid arthritis. Is finally helping after 2- yr

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@ollie2018

My husband takes Kineret injections daily. He has pseudo gout and pseudo rheumatoid arthritis. Is finally helping after 2- yr

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Thank you for suggestion - did he have prednisone addiction?

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