Gastritis, diarrhea, constipation, GERD diagnose can be mistaken.

Hi,
After having all those symptoms for years and been poked prodded and investigated from both ends, all manner of diagnosis have been theorised through my journey, with no actual proof to back them up. Latest diagnosis is Autonomic polyneuropathy (ANS) which gives me SIBO regularly. This came about from gas testing the stomach, finally some hard evidence. It took an astute ED Dr to recognise the Autonomia symptoms, otherwise I would still be none the wiser. With no treatment for ANS I have been able to throw away all the medication that was supposed to deal with the symptoms and now concentrate on SIBO medication when required. With no hope of stopping the symptoms I'm left dealing with them as best I can in my own way. Whatever works for me is what I do to get though the days. Having good days is now a thing of the past with each day a challenge to get through. Some days it is sitting it out waiting for a "better" day to come. My days are spent trying to manage the corrupted digestive system which has become a permanent feature of life for me and trying to ignore the other symptoms ANS causes randomly. I'm left in limbo unable to get the help I would like, but acknowledging that there is no help available anyway. All I can do is wait for ANS to stop the heart and end this invasive disease.
Cheers

Please keep me posted on your condition. I was diagnosed with gastroparesis about eight months ago. I have always suffered from constipation and now it is horrible with gastroparesis. They don’t want you to eat any raw salads, nuts, fiber, etc. I had a fun application operation for years ago and they cut my esophagus and I think damage my stomach. I had it because of heartburn now the heartburn is back and the constipation is horrible. My food stays in for a couple of days at least and, like you I have the swollen stomach. I am now taking lactose every eight hours sometimes it helps they called in a new drug for me, but I found out it was 500 of month and I can’t afford that , so still trying to figure out what foods I can eat that don’t give me heartburn or make me so bloated

@bmtrumps hi, shawnkthryn here. I've gotten off all supplements. Mirilax, Metamucil, the bottle w a purple cap. GERD med stopped 3-4 wks. Four days w regular bm. Tonight 1st time I'm w D since 12/12/23. I'm eating sunshine bars. Peeled potatoes, carrots w ginger (for pepper) & Lil bouillon. Stopped all spices incl s&p. Squash, sweet potatoes. No seeds, no popcorn, no preservatives no meat. Boost 30g protein 2-3 a day. Drinking juice diluted w water. Gastroparesis- slow to empty; I'd only go 1x wk - 10 days. Trying to get my biological clock working w o all the taking stuff everytime I turn around. Let you know re my appt this Tues. & food emptying test. Wish you the best. Oh stop rice & corn. Can fruit & can veggies. I'm at 83#'s. Was 105 wt prior to all the crap.

I totally understand!

So sorry. I have had all the test and it confirms Gastro paresis the operation. I had to stop the reflux messed up my stomach. I think the nerve that the Gastro paresis, my heartburn has returned. I am back on the prescription drugs, even with the drugs, if I eat anything, I get horrible heartburn. I just need to be more disciplined to eat soft foods I do my own protein shakes but every now and then I want some solid food. I ate enchiladas on vacation and paid for it heartburn for two days today I made six large pancakes with protein powder and 85 of them Constipation is horrible. They just ordered a new medication but it’s 500 a month so I won’t be taking that four. I’m still working on finding the right formula and I know I will if it means eating soup and drinking smoothies for the rest of my life, I will do it. I am 84 years old and will be 85 in January, still in excellent health otherwise Gastro paresis, compared to 84 years old,
I am doing great. Keep me posted on your progress and good luck.

I feel exactly like you . 7 different diagnosis over 10 years chronic . I done everything I can do , suffer non stop 🛑 daily . Can barely eat , now heart ♥️ PVCs abd chronic fatigue and insomnia.
My life is not a life anymore.
No Dr’s can help or any supplements or any RX’s ( I do take Klonipin abs Ambien ), magnesium supplements for heart and some others .
I’m really ready to pack it in . I’m 63 .
It’s just too much . I’m sorry 😞 you deal w/ it too .
No life really at all .
The sad thing is my husband and I are about to become grandparents for the first time from my daughter and her husband and I can’t even enjoy that ;(

Hi,
I really don't know why I haven't pulled the plug by now. Something keeps me searching for hope that some help will turn up. Until ANS starts with the word cancer little will be done. All my life I have been a fighter and don't give in easily, but I have to recognise there is no hope at all and sooner or later the plug will be pulled before I can no longer take care of it. I have always worked with my hands on delicate work and find it almost intolerable to be loosing my hand eye coordination. I can put up with most things and deal with physical pain hourly without meds, by choice, but not having the hand eye coordination really bothers me. I get to feel useless at times when I need the dexterity. At 73 and a lifetime of decisive decision making is now fading to indecisions and desperation, a place I don't want to be.
It is funny how keeping busy blocks the problems from the mind and masks the symptoms until I settle down for some rest, only to have the consequences of being busy grab the opportunity to kick me when I'm down. Then the pain surges through the hands and legs leaving me uncomfortable and unwilling to delve into my bottle of opioid based medication I keep tucked away for the really bad times.
I always thought rest and relaxation was a solution for the body to recover, not the opportunity for ANS and everything else going on to gang up on me and have a picnic at my expense!
Cheers

So sorry 😢

We share our colon dramas w & w/o diagnosis or multiple diagnosed. I'm sorry you took a blow at others expense. GRRD, IBS, Torturous Redundant Colon - new news to me. Saw Dr; & thank God i'm not diabetic. We're poked & prodded from throat to bottom. To get high- fiber diet- oops, low-fiber, Wait. .. low soluble & high protein. Only to hear whoops. We're gonna try. .. what we need to ask Dr is whose the We in We're going to try a different diet.! No preservatives, no sugars, gluten free, celiac free, Wait. .. We all want, need & deserve Answers. It is a daily battle w bowel problems. How can we accomplish or achieve our goals, hopes & dreams if it revolves around a toilet. I want to encourage you that our body speaks volumes to us. I had to quit salads, fresh vegetables & fruits. Was given the diet & gladly transitioned from no skins causing D. Then I ate 2 weeks salad & Nothing. Guess our bodies are so complex, they'll blame it on our mind. Cheers.

Hi,
Interesting comments and what I assume a lot of us have to put up with. I know I'm not the only one going through such troubles despite it feeling like I'm the only with such problems.
I spent an hour or two with another Geriatitian this afternoon after dressing down the last one after it was evident she was being one eyed and resolved that she couldn't help me. Damn it felt good then, but this time I was under instructions to take my wife to keep me inline. They don't appreciate nothing would keep me quiet if I feel I'm being given the bad end of a stick, yet again! The hint was definitely there if nothing is found yet again I'm depressed and in need of a phyc Dr. Seems to be a common denominator when all else fails, pull out the crazy card. I wonder if in their training they every learnt to look deeper when they can not find a cause for some pretty obvious symptoms. Anyway I'm now off the SIBO meds and there is little change so the nasty guts rumbles on, literally.
We now have another focus, poisoning or some form of dementia going on, ruled out Parkinsons though. Finally some testing and a brain scan are planned. In the last few weeks I have been noticing the hand eye coordination getting worse and after around 4 hours I'm all in knackered and starting to stumble around. The Osteoarthritis in the hands has become more painful and I'm fumbling everything I try to touch, frustration levels are starting to go through the roof, yet again. Just hope I can wind my neck back in before it is too late. They wonder why I have become withdrawn and reclusive, because it hurts me less, head in the sand policy!
Resolved tonight to go back on a starvation diet taking filtered water only as this shuts up the stomach and with hope will kill off the nasties in the small intestine. I thought I was lacking vital neutriants but after stumbling 9Kms last week I guess that is not an issue. I was waiting for the booze patrol I passed to stop me and check me for being drunk in charge of the footpath!
For now life goes on.
Cheers