I've also had difficulty getting help with this issue and have spent over two decades looking for it. I've had just about every test known to man including exploratory laparoscopy through the abdominal wall. This was about 17 years ago and it was at the time suspected that I may had ruptured my diaphragm 5 years prior during a traumatic accident and perhaps this was the cause of my recurring, incessant upper left GI pain and noises. At the time nothing was done and I suffered for the next decade or so avoiding Dr's because I was fed up and disgusted with them blowing me off, accusing me of drug or attention seeking behavior, and simply telling me I had IBS.

Most recently (within the past year) my condition has worsened. Now, like before, it often occurs upon deeper diaphragm breathing and has gone from being a constant nuisance and disruption but bearable pain to intermittent full on "attacks" as I call it where the noises continue and the pain increasese until the noise stops abruptly and I have trouble breathing, swallowing, seeing, become disoriented, start to panic, and feel stabbing tearing pains in that area and around it. I've had upper ED, colonoscopy, MR Enterography, CT, and fecal panels. This has led to new findings of high calprotectin levels but ruled out Crohns and UC on colonoscopy. I did come back positive for Lymphocytic Colitis and Ileitus on biopsy. No signs of high splenic flexure angles were seen but I was told I have a VERY redundant colon. This makes sense as I am sometimes able to resolve the noises by passing gas through inversions, yoga, sublingual levsin, abdominal massage. Perhaps the redundant colon is causing the issue only when feces and gases are trapped and weighing it down. I believe the scar tissue and adhesions from my accident may contribute in some way to the colon being out of place but again, nothing seen or done on the laparascopic surgery. I have started a FB group for people in our situation a few months ago, and it is steadily growing. I cannot believe the amount of people suffering from SFS that are in similar situations: with no real diagnosis or hope for a cure or even a suitable relief plan. Feel free to join us for commiseration. I can't post a link as I'm new here but feel free to search FB groups for "Splenic Flexure Syndrome/ Mystery Upper Left Quadrant GI Pain and Noises".

You are not alone.

I would welcome any Dr's who happen to read this thread to join the group as well. There is not enough attention given to this for the amount of suffering it causes.