← Return to Hypertrophic Cardiomyopathy: Dealing with Shortness-of-breath

Discussion
Comment receiving replies
@lakeview

I am skeptical about taking camzyos, they can cause heart failure

Jump to this post


Replies to "I am skeptical about taking camzyos, they can cause heart failure"

I am also very skeptical about all medications. However, the protocol around Camzyos is very thorough and echocardiograms every month for the first 3 months and then every 3 months ensures that your doctor is keeping a very close eye on how the drug is affecting you. I'm almost 4 months into my Camzyos regime and have been surprised and pleased.

When we have HCM, our hearts are gradually "failing". 24-7-365! We are all going through constant and various stages of "heart failure" and heart failure is not just "end-of -life" heart failure. So how do you want to spend the rest of your life with your failing heart? To me the big question is, how much of my children's inheritance do I want to spend on Camzyos in order to improve the quality of what's left of my own life? It's a touch choice.