Lichen Sclerosus - Now need cystoscopy - Anyone else?

Hello all. I went to the appointment for my cystoscopy today. The doctor took one look and said "I don't see how you're able to pee at all." We'll need to do surgery and "open you up." Now I continue to struggle and WAIT!!. I hate that I've had to wait two weeks since my urodynamic test. If only he was able to step in and take a quick look at that time. I feel the surgery could already be behind me.
Also got a call that a biopsy on my hand is squamous and will require traveling 90 miles to get Moes surgery. We have no choice but to keep moving.
The best to everyone.

@2thfairy perhaps you meant your response for @fdixon63 who has been going through all these problems …?

I also have Lichen and had a biopsy down there this past summer. I use the Clobetsol creme once a week. Don’t worry about the Mohs surgery, I’ve had it twice on my nose and it wasn’t as bad as I thought. At age 73 it seems like something always wrong. I was also DX with autoimmune PBC with advanced liver cirrhosis 3 years ago. Best of luck with your surgeries 💚

Hi gema98. Are you using estrogen cream in additional to Clobetasol cream? I was alternating these two topical meds until a few weeks ago. The GU/GYN doc said to use the estrace cream every night. It has helped a lot but I'm wondering if there is a cancer risk. Hope I can get some answers soon. I'm not worried about the Mohs just the local anesthesia. I've had numerous Mohs surgeries and that is the worse part as there is no feeling during the surgery. I'm not familiar with PBC. Is that what contributed to the liver cirrhosis? So sorry you're having to deal with that.

Hi rashida. No, the doctor did not say specifically what the surgery entailed. I'm usually a little quicker on my feet and would have left with answers but guess I'm slowing down. Yes, glad to have the surgery under anesthesia but what is the recovery like? I'll find out. I can post the results here if you like?

@rashida. Morning. Thought I would post something for you (and others) as you've all helped so much with your comments and experiences. I finally saw the doctor on Oct. 31 and he immediately said I needed surgery to open me up and left the room. I did not see anyone when I checked out--was told someone would contact me. After a couple of days I called the office and had to leave message. I then sent a couple of portal messages and they responded that they were aware that I needed to be scheduled and would contact me when they knew more. So, yesterday at 4:30P (2 weeks later) I got a call and said they could do the surgery next Tuesday. That would be great BUT I have the Mohs surgery scheduled Monday. As it takes so long to reschedule with the Mohs surgeon, I had to say no. The next time the uro has available is Jan. 3. WOW!! I told her to keep the Jan. 3 open for me and to put me on the "cancellation" list just in case something comes available sooner. The surgery is for "release of labial adhesions." Everything seemed to come at once so we do the best we can. Take care all. Everyone is in my prayers with whatever you're dealing with.