Thank you baystater and boatsforlife! - this is all very helpful. I am 73, mild symptoms started 4 years and didn't get diagnosed until a TEE in June of this year - I only have breathlessness that barely interferes with my daily life but has progressed from earlier. I do know that medicare does not cover Camzyos at all - either in Part B or Part D. Also, I believe that there is no prescription drug cap on a drug that is not being covered by medicare -- maybe Bristol Myers covers more once you are on medicare - I don't know. We have medicare Part D and a good supplemental plan so we will have to see what the supplemental plan will do and what BMS will do. Since it is open season (our supplemental plan is federal), we wanted to research various plans with our supplemental insurance company which is United Healthcare - but they won't tell us anything at this point - until I have a prescription and pre-authorization - so we have no idea which supplemental plan is best - a Catch 22 at this point - oh well - just need to take this a step at a time. Also, boatsforlife - I agree with you about avoiding surgery if at all possible!