← Return to Why Camzyos instead of surgery?

Discussion

Why Camzyos instead of surgery?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 20 6:47am | Replies (13)

Comment receiving replies
@boatsforlife

Hi @joycehocm . I can't speak to why a cardiologist would recommend either medication or surgery - that's way beyond my expertise but your cardiologist and COE specialist can answer that. My own personal view on it is that in one case I take a medication (an expensive one, for the rest of my life, admittedly). In the other case, someone either chemically burns away part of my heart muscle, or they break open my chest and slice out pieces of the heart. (I'm being over dramatic, I admit.) I had abdominal surgery (not heart surgery) and it was into a the second year after that I finally quit experiencing physical pain and emotional distress. I have no desire to repeat that, and the whole idea of someone slicing away pieces of my heart gives me the screaming heebie-jeebies. Yes, I'd do it if there were no other option, but I'd want to try other options first. You might rightly ask why I would chose to toss chemicals into my body that interfere with the way my heart is working. I guess one option just scares me more than the other. As for the expense, I'm in Canada where things maybe work a little differently from the US, and I have an amazing health care plan that covers most of the expense. For all the slagging that goes on about "Big-Pharma", I have to say that Bristol Myers has been very generous about covering what my health care plan doesn't, and I'm grateful. For what it's worth, my experience on Camzyos has been literally life changing and I'm so happy to have had that option. But my advice is worth what you paid for it. Listen instead to to your specialists. Get second opinions if you think you should. Wherever you end up - good luck!

Jump to this post


Replies to "Hi @joycehocm . I can't speak to why a cardiologist would recommend either medication or surgery..."

Thank you baystater and boatsforlife! - this is all very helpful. I am 73, mild symptoms started 4 years and didn't get diagnosed until a TEE in June of this year - I only have breathlessness that barely interferes with my daily life but has progressed from earlier. I do know that medicare does not cover Camzyos at all - either in Part B or Part D. Also, I believe that there is no prescription drug cap on a drug that is not being covered by medicare -- maybe Bristol Myers covers more once you are on medicare - I don't know. We have medicare Part D and a good supplemental plan so we will have to see what the supplemental plan will do and what BMS will do. Since it is open season (our supplemental plan is federal), we wanted to research various plans with our supplemental insurance company which is United Healthcare - but they won't tell us anything at this point - until I have a prescription and pre-authorization - so we have no idea which supplemental plan is best - a Catch 22 at this point - oh well - just need to take this a step at a time. Also, boatsforlife - I agree with you about avoiding surgery if at all possible!