Bottom line, and I always encourage everyone to take ownership of their situation, good or bad, confusing or scary, undefined or known; start with google searches of formal academic research which is widely available at many websites. Journal of American Medical Association, British Medical Journal, National Institutes of Health, etc. Read everything, write down some puzzles or questions that are never addressed in what you read, and then seek answers from real people...in the field. Much of what you find can be read by the lay person, even if you have no formal training. They often have glossaries, or they spell out a term the first time and then put the abbreviation they'll then use in parentheses [ atrial fibrillation (AF)]. I have to reread some paragraphs once or twice to get a better gist. But you end up with an idea of 'where this is going'. And, you'll have some idea of options, their pros and cons, and what you're likely to want to ask of your physician. I did that for a catheter ablation to rid me of the awful symptoms associated with my atrial fibrillation. My cardiologist finally sent me to a great electrophysiologist (EP) on Vancouver Island, where I live. After two ablations inside of eight months, the second one has had me blissfully in NSR (normal sinus rhythm) for coming up to two years now.

Knowledge is power. Keep a reasonable balance of power in your relationships with health care experts by learning what they're thinking and if you should agree to what they propose, or if they'd support an alternative that you prefer.