← Return to Hypertrophic Cardiomyopathy: Dealing with Shortness-of-breath

Discussion
Comment receiving replies
@boatsforlife

Hello @lakeview and welcome. This forum has been immensely helpful to me in my walk with HCM. Even though you did not specifically ask about the medication mavacamten (Camzyos), I would encourage you to spend some time reading through the discussions at the link below. It doesn't help your symptoms to hear that others have similar stories, but for me it was reassuring to discover that I wasn't just crazy or lazy (although I may be both!).
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
You will find that lots of us have had very similar kinds of symptoms to what you describe - perhaps not quite as severe as yours. On a good day I could *stroll* on level ground but any kind of slope or stairs was out of the question. Bending down to tie my shoes? Ha! Ten minutes of recovery time after that. I was very lucky to be eligible for Camzyos and very lucky that it has worked extremely well for me. I hope you can get relief, whether by medication or surgery.

Jump to this post


Replies to "Hello @lakeview and welcome. This forum has been immensely helpful to me in my walk with..."

I am skeptical about taking camzyos, they can cause heart failure