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Benign fasciculation syndrome (BFS)
Not sure if this is the right place to ask this, but I'm really not sure how to interpret what's going on. I'm 40, have had random twitches now and then around my body for a few years and ignored them. Mentioned it to my Doctor last year during my annual routine health check and she said it's likely just stress and ignore it. Got sick a month ago, high fever, headache, dizziness, chills, and near constant twitching in different spots all over my body. My knees were going crazy and my biceps were twitching, I felt like my body was malfunctioning. I was also itching all over and my extremities were aching, especially in my feet and hands, but when I pressed or touched my feet or hands, there was no pain spot.
Two weeks after I got referred to a Neurologist who checked my strength, did not do any EMG or MRI, no other tests, just testing if I could physically push back or feel anything below my knees and past my elbows. He laughed and said I have benign muscular fasciculation syndrome and gave me some Xanax. I went for a second opinion and got the same diagnosis, benign muscular fasciculation, and was asked to return after a few months to check on me. The twitching is not as constant as before, but it's still happening, arms, lower and upper legs, knees, neck, shoulder, chest, they last a few seconds and stop. I can't sleep, the itching and the twitching wakes me up at night. The twitching does not go away when I move the muscle, it keeps twitching. Has anyone else ever had anything like this? If so, how or did it resolve?
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Wow mine 3 years im 42. Atleast we have some comfort we are not alone.
Still suffering here with the all-over-the-body twitches, minor numbness, and minor "asleep" feelings in various and random areas of the body.
Has anyone gone to these Nueropathy centers you see ads about? I guess there is ECS treatment that is primarily for nueropathy?
Also, I read that Red-light therapy could help with nerve issues, and I already use it for other things. Has anyone had success with this?
I'm trying to put together a list of things to try that might be helpful, and to do them separately to see if it's that ONE thing that could help. I have already tried the Magnesium, B12, and D... but not really helping. Haven't tried Calcium yet. What else?
Before randomly trying things, you could do bloodwork which would identify if calcium, magnesium, B12, D, Lyme antibodies, etc. are out of normal ranges. That's what my neurologist did to rule out most possible fasciculation causes. That's how he narrowed it down to BFs or ALS.
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1 ReactionI can relate. I did have the body wide fasciculations, now hardly ever, but still have the minor numbness asleep feeling in hands and feet. In hands only occasionally during the night only. I’m seeing neurologist and several causes are being considered. He said B12 deficiency, but I suspected long standing type 1 diabetes or post covid syndrome. Have you had those things?
Hi @fela0218 . Thanks for asking .
His follow up on Monday went well !! Thank God .
His EMG back on August was normal . His clinical exam was normal too this past Monday . Dr saw only two fasciculations on his right calf . She said they seem benign , she was very reassuring since his clinical and EMG are normal . She said all the stiffness and fatigue can come form back problems . He needs a low back MRI . He does exhibit a very sporadic involuntary movements that seem to be myoclonus . He was referred to a movement Dr . He has an appt on December for that .
Thanks again !
I think I mentioned his back! I get leg pains and low back pain all the time..I should get a back MRI as well. I need a revisit with my neuro doctor. Keep us posted! God Bless you
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