Connect
← Return to How many doctors did you see to get to your NETS diagnosis?
Discussion
How many doctors did you see to get to your NETS diagnosis?
Neuroendocrine Tumors (NETs) | Last Active: Nov 22 10:00am | Replies (20)Comment receiving replies
Hello @pamela1685 and welcome to Mayo Connect's NETs support group. I appreciate you sharing about your experience with NETs. Your post shows the importance of seeking the opinion of a NET specialist and not relying on a general oncologist.
As this is your first post on Connect, feel free to share a little about your NETs journey as you are comfortable doing so. For example, how long ago were you diagnosed? I'm also wondering if your treatment or follow up care has changed now that you are being seen at UCSF?
Replies to "Hello @pamela1685 and welcome to Mayo Connect's NETs support group. I appreciate you sharing about your..."
Connect
Hi Teresa,
Thank you for your kind reply. I was diagnosed with gastric NET this past January. I have autoimmune atrophic gastritis, and was told 20 years ago hat I had a high possibility for developing stomach cancer. I had a routine upper endoscopy in December 2023, when they found and removed tiny but numerous tumors that were malignant, along with much larger benign polyps.
The treatment plan at UCSF is to go in annually for an endoscopy and remove the tumors as they crop up.
The only symptoms I have are decreased appetite, bloating, constipation, and weight loss due to extremely slow digestion. The irony is that everyone tells me I look great. Lol!