← Return to PMR savvy doctors in Portland Oregon

Discussion

PMR savvy doctors in Portland Oregon

Polymyalgia Rheumatica (PMR) | Last Active: 3 days ago | Replies (14)

Comment receiving replies
@yogabonnie

I think that your nasty rheumy has moved here to Minnesota. Ha. same situation. I have been on for 8 years becasue of PMR and am fine actually at 2mg. with tylenol added for osteoarthritis... She told me PMR only lasts 1 year EMPHATICALLY and dismissively and that I just needed to taper and perhaps take sulfasalazine *anyone on that?).. which seems to be for Crohns disease and RA neither of which I have. I will not see her again. When I drop below 2mg. which I did for 2 months stayed at 1.5 just to OBEY her.. I was in terrible pain and did not exercise and slept a lot and was miserable. when I am at 2mg. (I went up to 4 and tapered quickly back to 2) I feel ok and walk 3 miles a day and do yoga 2 x a week and beginner tap dance. Surely having the exercise and the happiness is more beneficial than 2 mg of Prednisone__??? sorry this is so long. any thoughts? thanks.

Jump to this post


Replies to "I think that your nasty rheumy has moved here to Minnesota. Ha. same situation. I have..."

Hmm...maybe she cloned. I'm in total agreement that you should dump your rheumie, and I'm glad that you can get by on 2mgs. Right now I'm still on 6 and will go back to 5, and then hopefully see someone else soon. Good luck!