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@ronegeorge

I have been diagnosed with primary myelofibrosis for 6 yrs, after having elevated platelets, and after having a bone marrow biopsy, which detected excess megakaryocytes. I'm now 77. Ron

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My husband was diagnosed with primary myelofibrosis 1 month ago. The doctor hasn’t stated him on a treatment yet. His platelets are extremely low, he has had 6 platelet transfusions. It is a very scary journey. If anyone has any experience with this please comment. We go back to the doctor Wednesday and hopefully he will began treatments.