Meningioma: Anyone else? I'm frightened

after six years on wait and watch, my M has tripled in size in last 5 years and surgery is being planned. Last mri was 48 hours ago and i have pounding headache that hasn’t allievated

Thank you so much for posting this.
My mother was recently diagnosed with possible Meningioma. She was having debilitating headaches for several days and tried to drive herself to the ER. She couldn't. That was almost a month ago, and still no relief. It is taking so long to get anything done. She just had MRI yesterday. We went back to to her oncologist at Shands here in Gainesville, FL. I am seriously considering taking her to Mayo Clinic in Jacksonville, because her next appointment is not until 11/19/24. Oncologist prescribed Hydrocondone it did not work. She then broke out with Shingles on her scalp so they tried Gabapentin, that didn't work either. Has anyone found any relief for the headaches ? What did you do?

I do have it .. and also discovered accidentally..
I hear too much noises and feel pressure in my skull and ears .. can't sleep and can't listen to anything.
I must have my surgery in 3 weeks ... and I am worrying a lot.

Hi, I just found out I have a timy Meningioma tumor from a MRI also and my Doctor said they are almost always benign. I too, am going to get an apointmetnt with a neurologist. My Doctor also said they may just wait and see what happens. Best of wishes!

after six years on wait and watch, my M has tripled in size in last 5 years and surgery is being planned. Last mri was 48 hours ago and i have pounding headache that hasn’t allievated

Yes, I have one. I was also told the same thing. It’s been 3 months since the discovery. I have another appointment with the Neurologist this week and probably will get a new CT Scan. FYI, I have no symptoms. Jeanne

I was scared to death with my first one, so I know what you are feeling. The good thing is meningiomas are slow growing and benign. They are not a death sentence! I had one 20 years ago, had radiation done and it was gone. Just discovered a second one a few months ago. I have a new doctor, he wants to wait and see with this one.
Best things to do are to consult with the doctor, keep getting scans, and discuss treatment. Join a support group, especially one that meets live. The one I joined last time, really saw me through a lot. Yes, this is frightening, but you wil get through this.

For Kimd0529: I had a craniotomy to remove a meningioma a year ago. Yes, being diagnosed is a shock. The key is to find a surgeon and hospital you have absolute confidence and trust in. That makes accepting one's diagnosis and following through with any interventions easier. My tumor was in a tricky location to access, and only 1/16th of an inch from my optic nerve. All follow up MRIs have verified that it was totally resected. The location of your meningioma might be more easily accessible. And, the craniotomy was not the horrible experience I had imagined it to be. I've had 2 mastectomies and I will offer the craniotomy was no worse. Currently, I have 2 other meningiomas ( 6 mm. & 8 mm) that my surgeon has suggested we watch-and-wait. There are a lot of factors that go into a neurosurgeon's advice and I have learned to trust his expertise and not obsess about those meningiomas taking up space in my brain.

I'm told my bone flap (from 2023 crainiotomy and subsequent removal of infected hardware and bone chip left after surgery] may still have bacteria in it and a "10-minute crainiotomy" could be done to determine if, in fact. there is infection still there. This 10-minute procedure would be enough to scrape some bone to do more testing on bone flap situation. What does your dr tell you about your "indolent bone infection?" I had 6 weeks of daily antibiotic infusions after removal of the infected hardware. My dr said I would probably need that again if I choose to have the "10 minute" procedure to get a new bone scraping. Have you been taking intravenous antibiotic treatment? I'm in a 6-month waiting mode to see what to do. Thank you.