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How long before benefits of Camzyos were realized?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 6 days ago | Replies (28)
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@joanallione

I have HOCM with a heart murmur since birth, I have been told from my echoes that they the gradient is anything from 23 to 121. Has anyone else experienced that echocardiogram including with Stress are really undependable and seeing you seem to get wildly different results? also I don’t have the canning of the septum. I have a genetic small knuckle that sticks out and blocks the outflow valve so I’m not a candidate for surgery. I’ve been debating about Camzyos for several years now the last time I was told my gradient wasn’t bad enough but on December 18, I’m going to have another Stress Echo to determine if that last one was correct or not.

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Replies to "I have HOCM with a heart murmur since birth, I have been told from my echoes..."
manuelpo | @manuelpo | Nov 11 1:15pm

I have a murmur and obstructive HOCM too plus a leaky valve. I am 64 years old, my gradient was between 45 and over 240 mm Hg. So I started Camzyos 7 months ago and my gradient reduced now to less than 45 mm Hg. My septum basal diameter reduced from "2.2 cm" (yes centimeters not millimeters) to 1.6 cm. I am feeling a lot better. I hope you can soon qualify to use Camzyos which is the only medicine that works for me. Good luck and I hope you improve your heart conditions.

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