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Feelings when tapering: My journey
Polymyalgia Rheumatica (PMR) | Last Active: Nov 13 10:21am | Replies (57)Comment receiving replies
First week of 7mg all done and I have noticed one very big change. Once I started using pred I became very tired by 1pm and was normally in bed by 4.30pm and my Dob adjusted very quickly to this so long as she could share my pillow. Asleep by 6 then up at 2.30am and of course Dob was more than happy with this. But this week I have been able to actually go out in the afternoon and go to bed later. Only problem Dob of course thinks or wants to get up at 2.30am. I am sure she will adjust again in a few days and stop standing by the bed with squeaky ball in her mouth. That tired feeling did seem to go on and on but hopefully that phased has passed.
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My husband sleeps/dozes 75% of the day! Maybe the prednisone is responsible. He is also now on methotrexate as his PMR became more active with the reduction of prednisone. He also has GCA and is almost totally blind. He uses a cane because his blindness affects his balance. I will try adding multi vitamins to see if that helps. Millie , our dog, loves to sleep:snooze with dad - but then my husband is up and down all night. Fingers crossed vitamin helps!!!
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I had terrible fatigue from the prednisone, too. I wanted to sleep all the time. I finally started a daily multivitamin. It seemed to help, I had much better stamina and wasn’t sleepy all the time. At that time I was down to 5 mg.